[Celiac disease: diagnostic criteria and impact of gluten free diet--patients' perspective].
| Title: | [Celiac disease: diagnostic criteria and impact of gluten free diet--patients' perspective]. |
|---|---|
| Transliterated Title: | Boala celiacă--diagnostic si impact al dietei fără gluten din perspectiva pacientului. |
| Authors: | Anca I; IOMC Alfred Rusescu Bucureşti, Clinica I Pediatrie.; Stănescu-Popp A; Arama V; Duţă D; Alexe G; Colcer F |
| Source: | Revista medico-chirurgicala a Societatii de Medici si Naturalisti din Iasi [Rev Med Chir Soc Med Nat Iasi] 2008 Apr-Jun; Vol. 112 (2), pp. 351-5. |
| Publication Type: | English Abstract; Journal Article |
| Language: | Romanian; Moldavian; Moldovan |
| Journal Info: | Publisher: Societatii De Medici Si Naturalisti Country of Publication: Romania NLM ID: 0413735 Publication Model: Print Cited Medium: Print ISSN: 0048-7848 (Print) Linking ISSN: 00487848 NLM ISO Abbreviation: Rev Med Chir Soc Med Nat Iasi Subsets: MEDLINE |
| Imprint Name(s): | Publication: Iasi : Societatii De Medici Si Naturalisti; Original Publication: Iaşi. |
| MeSH Terms: | Diet, Gluten-Free* ; Patient Compliance*; Celiac Disease/*diagnosis ; Celiac Disease/*diet therapy; Adolescent ; Adult ; Child ; Child, Preschool ; Data Collection ; Humans ; Middle Aged ; Quality of Life ; Risk Factors ; Severity of Illness Index ; Surveys and Questionnaires ; Treatment Outcome |
| Abstract: | Unlabelled: Clinical, serological and histological remission in celiac disease is strictly related to long life complete exclusion of gluten from the diet. Because celiac disease is an autoimmune systemic disorder the potential complications include a wide spectrum with two severe long-term morbidities: osteoporosis and malignancy. Gluten free diet, easy to be recommended, is difficult to be followed. This study aimed at evaluating the diagnostic criteria and dietary instruction, quality of life issues, impact of the gluten free diet on the celiac patient.; Material and Method: 250 patients (mean age at diagnosis 18.18 years) on gluten-free diet were asked to fill out a disease specific questionnaire.; Results: The response rate was 58.4% (mean age at diagnosis 11 years); 7% had no biopsy proven diagnosis (being excluded) and 28.26% had only antigliadin antibodies tested as serology method; 84.78% had typical digestive symptoms at diagnosis; 28.2% had been followed up after the diagnosis; information about the disease and diet have been provided exclusively by the gastroenterologist in 95.6% of the responders, 45.6% considering the information insufficient. The gluten free products were considered in 73.9% of cases too expensive for the family income, with low availability, lack of variety and unclear labeling; 48.8% reported impaired access to certain activities (social events, traveling) and even having difficulties to be accepted for some jobs.; Conclusions: There is evidence that an educational program is needed to improve knowledge on the atypical forms of disease, diagnostic criteria and tools. The quality of life would be improved by support groups for patients, improved availability, better prices and food labeling. |
| Entry Date(s): | Date Created: 20090320 Date Completed: 20090625 Latest Revision: 20151119 |
| Update Code: | 20260130 |
| PMID: | 19295003 |
| Database: | MEDLINE |
English Abstract; Journal Article