The Experience, Prerequisites, and the Barriers in Organizing a Specialized Rehabilitation Program for Patients with Pulmonary Hypertension.
| Title: | The Experience, Prerequisites, and the Barriers in Organizing a Specialized Rehabilitation Program for Patients with Pulmonary Hypertension. |
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| Authors: | Palevičiūtė E; Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.; Competence Centre of Pulmonary Hypertension, Vilnius University Hospital Santaros Klinikos, ERN-LUNG, Vilnius, Lithuania.; Gumbienė L; Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.; Competence Centre of Pulmonary Hypertension, Vilnius University Hospital Santaros Klinikos, ERN-LUNG, Vilnius, Lithuania.; Jurevičienė E; Competence Centre of Pulmonary Hypertension, Vilnius University Hospital Santaros Klinikos, ERN-LUNG, Vilnius, Lithuania.; Centre of Pulmonology and Allergology, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.; Šimbelytė T; Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.; Laucevičienė I; Department of Rehabilitation, Physical and Sports Medicine, Vilnius University, Vilnius, Lithuania.; Laucevičius A; Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.; Barysienė J; Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.; Eichstaedt CA; Centre for Pulmonary Hypertension, Thoraxklinik Heidelberg gGmbH at Heidelberg University Hospital, Translational Lung Research Center Heidelberg (TLRC), German Center for Lung Research (DZL), Heidelberg, Germany.; Laboratory for Molecular Genetic Diagnostics, Institute of Human Genetics, Heidelberg University, Heidelberg, Germany.; Benjamin N; Centre for Pulmonary Hypertension, Thoraxklinik Heidelberg gGmbH at Heidelberg University Hospital, Translational Lung Research Center Heidelberg (TLRC), German Center for Lung Research (DZL), Heidelberg, Germany.; Grünig E; Centre for Pulmonary Hypertension, Thoraxklinik Heidelberg gGmbH at Heidelberg University Hospital, Translational Lung Research Center Heidelberg (TLRC), German Center for Lung Research (DZL), Heidelberg, Germany.; Čelutkienė J; Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania. |
| Source: | Respiration; international review of thoracic diseases [Respiration] 2021; Vol. 100 (10), pp. 949-957. Date of Electronic Publication: 2021 May 27. |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: Karger Country of Publication: Switzerland NLM ID: 0137356 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1423-0356 (Electronic) Linking ISSN: 00257931 NLM ISO Abbreviation: Respiration Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: Basel, New York, Karger |
| MeSH Terms: | Hypertension, Pulmonary*; Exercise Therapy/methods ; Exercise ; Humans ; Quality of Life ; Retrospective Studies |
| Abstract: | Background: Pulmonary hypertension (PH) is a severe progressive disease, associated with reduced exercise capacity and poor quality of life. Although scientific evidence supports the incorporation of specialized training in the treatment of PH, it is only available in a few countries.; Objectives and Methods: This article aims to share the experience of implementing a PH rehabilitation program, to summarize the barriers and prerequisites for launching this service, and to assess its early effect. We retrospectively analyzed our pathway in organizing this program, by singling out essential steps.; Results: The preparation phase took about 14 months. Establishing and running of a PH rehabilitation program required dedicated rehabilitation specialists to join the multidisciplinary PH expert team. Team members needed to gain special knowledge on exercise training in severely compromised patients; thus, supervision and education by experienced consultants was crucial. The main eligibility criteria for patients were stable status, optimal medical treatment, and motivation to undergo the training. The first results evaluating the effect of a specialized PH training program in 9 patients are promising. Seven of them improved their functional capacity over the period of 15 weeks.; Conclusions: Despite a number of challenges and barriers, the implementation of a specialized rehabilitation program should be encouraged in a few dedicated PH expert centers per country, who are capable to fulfill all prerequisites and organizational aspects. Local PH experts, supervision by an experienced center, in-patient rehabilitation facilities, dedicated personnel, equipment, and patient motivation are essential.; (© 2021 S. Karger AG, Basel.) |
| Contributed Indexing: | Keywords: Exercise program; Implementation; Pulmonary hypertension; Rehabilitation; Training |
| Entry Date(s): | Date Created: 20210527 Date Completed: 20220516 Latest Revision: 20220516 |
| Update Code: | 20260130 |
| DOI: | 10.1159/000516331 |
| PMID: | 34044412 |
| Database: | MEDLINE |
Journal Article