Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England.
| Title: | Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England. |
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| Authors: | Taylor EL; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.; Thompson PA; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK. Paul.Thompson.2@warwick.ac.uk.; Manktelow N; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.; Flynn S; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.; Gillespie D; Centre for Trials Research, Cardiff University, Cardiff, CF14 4YS, UK.; Bradshaw J; Tizard Centre, University of Kent, Canterbury, CT2 7NF, UK.; Gore N; Tizard Centre, University of Kent, Canterbury, CT2 7NF, UK.; Liew A; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.; Evelina London Children's Hospital, Westminster Bridge Rd, London, SE1 7EH, UK.; South London and Maudsley NHS Foundation Trust, Michael Rutter Centre, London, SE5 8AZ, UK.; School of Psychology/ UK & Cerebra Network, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK.; Lovell M; Tees, Esk and Wear Valleys, NHS Foundation Trust, Rosewood Centre, Acklam Road Hospital, Acklam Road, Middlesbrough, TS5 4EE, UK.; Sutton K; Learning Disability and Autism Programme, NHS England, London, UK.; Richards C; School of Psychology/ UK & Cerebra Network, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK.; Petrou S; Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.; Langdon PE; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK.; Coventry and Warwickshire Partnership NHS Trust, Coventry, UK.; Herefordshire and Worcestershire Health and Care NHS Trust, Worcester, UK.; Grant G; Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.; Cooper V; The Challenging Behaviour Foundation, Chatham, Kent, ME4 6BE, UK.; Seers K; Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.; Hastings RP; Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, CV4 8UW, UK. |
| Source: | BMC health services research [BMC Health Serv Res] 2023 Dec 04; Vol. 23 (1), pp. 1354. Date of Electronic Publication: 2023 Dec 04. |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE |
| Imprint Name(s): | Original Publication: London : BioMed Central, [2001- |
| MeSH Terms: | Intellectual Disability*/therapy ; Intellectual Disability*/psychology; Caregivers/psychology ; Adult ; Adolescent ; Humans ; Child ; Community Health Services ; England ; Surveys and Questionnaires |
| Abstract: | Background: One in five children with an intellectual disability in the UK display behaviours that challenge. Despite associated impacts on the children themselves, their families, and services, little research has been published about how best to design, organise, and deliver health and care services to these children. The purpose of this study was to describe how services are structured and organised ("service models") in England for community-based health and care services for children with intellectual disability who display behaviours that challenge.; Methods: Survey data about services were collected from 161 eligible community-based services in England. Staff from 60 of these services were also interviewed. A combination of latent class and descriptive analysis, coupled with consultation with family carers and professionals was used to identify and describe groupings of similar services (i.e., "service models").; Results: The latent class analysis, completed as a first step in the process, supported a distinction between specialist services and non-specialist services for children who display behaviours that challenge. Planned descriptive analyses incorporating additional study variables were undertaken to further refine the service models. Five service models were identified: Child and Adolescent Mental Health Services (CAMHS) (n = 69 services), Intellectual Disability CAMHS (n = 28 services), Children and Young People Disability services (n = 25 services), Specialist services for children who display behaviours that challenge (n = 27 services), and broader age range services for children and/or adolescents and adults (n= 12 services).; Conclusions: Our analysis led to a typology of five service models for community health and care services for children with intellectual disabilities and behaviours that challenge in England. Identification of a typology of service models is a first step in building evidence about the best provision of services for children with intellectual disabilities who display behaviours that challenge. The methods used in the current study may be useful in research developing service typologies in other specialist fields of health and care.; Study Registration: Trial Registration: Current Controlled Trials ISRCTN88920546, Date assigned 05/07/2022.; (© 2023. The Author(s).) |
| References: | BJPsych Open. 2020 Feb 11;6(2):e20. (PMID: 32043438); PLoS One. 2017 Dec 20;12(12):e0188709. (PMID: 29261690); Struct Equ Modeling. 2014 Jan 1;21(4):534-552. (PMID: 25328371); Res Dev Disabil. 2001 Jan-Feb;22(1):77-93. (PMID: 11263632); Struct Equ Modeling. 2018;25(4):621-638. (PMID: 30083048) |
| Grant Information: | NIHR 129577 National Institute for Health Research (NIHR) |
| Contributed Indexing: | Keywords: Behaviours that challenge; Challenging behaviour; Children; Community services; Intellectual disabilities; Learning disabilities; Mapping; NHS; Service models |
| Entry Date(s): | Date Created: 20231204 Date Completed: 20231206 Latest Revision: 20231217 |
| Update Code: | 20260130 |
| PubMed Central ID: | PMC10696826 |
| DOI: | 10.1186/s12913-023-10388-9 |
| PMID: | 38049861 |
| Database: | MEDLINE |
Journal Article