Making it work for all: equity in single ventricle monitoring.
| Title: | Making it work for all: equity in single ventricle monitoring. |
|---|---|
| Authors: | Sooy-Mossey M; Paediatric and Congenital Heart Centre, Duke University, Durham, NC, USA.; Tallent S; Paediatric and Congenital Heart Centre, Duke University, Durham, NC, USA.; Hornik CP; Paediatric and Congenital Heart Centre, Duke University, Durham, NC, USA.; Duke Clinical Research Institute, Duke University, Durham, NC, USA.; Park S; Duke University, Durham, NC, USA.; Schmelzer AC; Paediatric and Congenital Heart Centre, Duke University, Durham, NC, USA.; Reynolds L; Duke University, Durham, NC, USA.; McCrary AW; Paediatric and Congenital Heart Centre, Duke University, Durham, NC, USA. |
| Source: | Cardiology in the young [Cardiol Young] 2024 Nov; Vol. 34 (11), pp. 2303-2310. Date of Electronic Publication: 2024 Oct 23. |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: Cambridge University Press Country of Publication: England NLM ID: 9200019 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1467-1107 (Electronic) Linking ISSN: 10479511 NLM ISO Abbreviation: Cardiol Young Subsets: MEDLINE |
| Imprint Name(s): | Publication: : Cambridge : Cambridge University Press; Original Publication: Chapel Hill, NC : World Publishers, c1991- |
| MeSH Terms: | Telemedicine*/statistics & numerical data ; Mobile Applications*/statistics & numerical data ; Univentricular Heart*/surgery ; Hypoplastic Left Heart Syndrome*/surgery ; Heart Ventricles*/abnormalities ; Heart Ventricles*/surgery ; Norwood Procedures* ; Healthcare Disparities*; Monitoring, Physiologic/methods ; Humans ; Retrospective Studies ; Female ; Male ; Infant ; Infant, Newborn ; Socioeconomic Factors |
| Abstract: | Background: Interstage monitoring programs for single ventricle disease have been developed to reduce morbidity and mortality. There is increased use of telemedicine and mobile application monitoring. It is unknown if there are disparities in use based on patient socio-demographic factors.; Methods: We conducted a retrospective cohort study of patients enrolled in the single ventricle monitoring program and KidsHeart application at a single centre from 4/21/2021 to 12/31/2023. We investigated the association of socio-demographic factors with telemedicine usage, mobile application enrollment and usage. We assessed resource utilisation and weight changes by program era.; Results: There were 94 children in the cohort. Patients with Norwood and ductal stent had higher mean telemedicine visits per month (1.8 visits, p = 0.004), without differences based on socio-demographic factors. There were differences in application enrollment with more Black patients enrolled compared to White patients (p = 0.016). There were less Hispanic patients enrolled than Non-Hispanic patients (p = 0.034). There were no Spaish speaking patient's enrolled (p = 0.0015). There were no patients with maternal education of less than high school enrolled and all those with maternal education of advanced degree were enrolled (p = 0.0016). There was decreased mobile application use in those from neighbourhoods in the lowest income quartile. There were decreased emergency department visits with mobile application monitoring. Mean weight-for-age z-scores had increased from start to completion of the program in all eras.; Discussion: Differences were seen in mobile application enrollment and usage based on socio-demographic factors. Further work is needed to ensure that all patients have access to mobile application usage. |
| Contributed Indexing: | Keywords: Health equity; language; mobile applications; race; single ventricle; socioeconomic |
| Entry Date(s): | Date Created: 20241023 Date Completed: 20250425 Latest Revision: 20250516 |
| Update Code: | 20260130 |
| DOI: | 10.1017/S1047951124026908 |
| PMID: | 39439097 |
| Database: | MEDLINE |
Journal Article