Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals.
| Title: | Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals. |
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| Authors: | Şahin N; Department of Pediatric Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey. nihal_sahin41@hotmail.com.; Baykal GÖ; Department of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.; Açarı C; Department of Pediatric Rheumatology, Faculty of Medicine, İnönü University, Malatya, Turkey.; Aydın PÖA; Department of Pediatric Rheumatology, Tekirdağ State Hospital, Tekirdağ, Turkey.; Baba Ö; Department of Pediatric Rheumatology, Karadeniz Technical University Faculty of Medicine, Trabzon, Turkey.; Bağlan E; Department of Pediatric Rheumatology, Etlik State Hospital, Ankara, Turkey.; Bakkaloğlu S; Department of Pediatric Rheumatology, Faculty of Medicine, Gazi University, Ankara, Turkey.; Bakırcı S; Department of Rheumatology, Antalya State Hospital, Antalya, Turkey.; Bilginer Y; Department of Pediatric Rheumatology, Faculty of Medicine, Hacettepe University, Ankara, Turkey.; Bozkaya BY; Department of Pediatric Rheumatology, Samsun Research and Training Hospital, Samsun, Turkey.; Çağlayan Ş; Department of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.; Çakan M; Department of Pediatric Rheumatology, Zeynep Kamil Research and Training Hospital, Istanbul, Turkey.; Çakmak F; Department of Pediatric Rheumatology, Başakşehir Çam and Sakura State Hospital, Istanbul, Turkey.; Coşkuner T; Department of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.; Demir F; Department of Pediatric Rheumatology, Acıbadem Hospital, İstanbul, Turkey.; Demirkan FG; Department of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.; Doğantan Ş; Department of Pediatric Rheumatology, Mersin City Hospital, Mersin, Turkey.; Dündar HA; Department of Pediatric Rheumatology, Behçet Uz Research and Training Hospital, Izmir, Turkey.; Ersözlü ED; Department of Rheumatology, Adana City Research and Training Hospital, Adana, Turkey.; Gücenmez S; Department of Rheumatology, Izmir Atatürk Research and Training Hospital, Izmir, Turkey.; Gürler O; Department of Rheumatology, Medikal Park Hospital, Samsun, Turkey.; İşgüder R; Department of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University, Izmir, Turkey.; Küçük A; Department of Rheumatology, Faculty of Medicine, Konya Selçuk University, Konya, Turkey.; Kalyoncu M; Department of Pediatric Rheumatology, Karadeniz Technical University Faculty of Medicine, Trabzon, Turkey.; Kılıç L; Department of Rheumatology, Faculty of Medicine, Hacettepe University, Ankara, Turkey.; Kılıç SŞ; Department of Pediatric Rheumatology, Faculty of Medicine, Uludağ University, Bursa, Turkey.; Kısaoğlu H; Department of Pediatric Rheumatology, Kayseri City Hospital, Kayseri, Turkey.; Kısaarslan AP; Department of Pediatric Rheumatology, Faculty of Medicine, Erciyes University, Kayseri, Turkey.; Kızıldağ Z; Department of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University, Izmir, Turkey.; Kurtuluş D; Department of Physical Therapy and Rehabilitation, Umraniye Training and Research Hospital, Istanbul, Turkey.; Özdel S; Department of Pediatric Rheumatology, Etlik State Hospital, Ankara, Turkey.; Öztürk K; Department of Pediatric Rheumatology, Göztepe Research and Training Hospital, Istanbul, Turkey.; Şenol P; Department of Pediatric Rheumatology, Faculty of Medicine, Gazi University, Ankara, Turkey.; Tanatar A; Department of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.; Taşkın SN; Department of Pediatric Rheumatology, Eskişehir City Hospital, Eskişehir, Turkey.; Kuru FT; Department of Rheumatology, Osmaniye State Hospital, Osmaniye, Turkey.; Türkuçar S; Department of Pediatric Rheumatology, Faculty of Medicine, Pamukkale University, Denizli, Turkey.; Ulu K; Department of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.; Ünsal E; Department of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University, Izmir, Turkey.; Yazıcı A; Department of Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey.; Cefle A; Department of Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey.; Yıldırım DG; Department of Pediatric Rheumatology, Faculty of Medicine, Gazi University, Ankara, Turkey.; Yüksel S; Department of Pediatric Rheumatology, Faculty of Medicine, Onsekiz Mart University, Çanakkele, Turkey.; Kasapçopur Ö; Department of Pediatric Rheumatology, Istanbul University-Cerrahpaşa, Cerrahpaşa Medical School, Istanbul, Turkey.; Özen S; Department of Pediatric Rheumatology, Faculty of Medicine, Hacettepe University, Ankara, Turkey.; Ayaz NA; Department of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.; Sönmez HE; Department of Pediatric Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey.; Sözeri B; Department of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey. |
| Source: | Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2024 Dec 18; Vol. 22 (1), pp. 105. Date of Electronic Publication: 2024 Dec 18. |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101248897 Publication Model: Electronic Cited Medium: Internet ISSN: 1546-0096 (Electronic) Linking ISSN: 15460096 NLM ISO Abbreviation: Pediatr Rheumatol Online J Subsets: MEDLINE |
| Imprint Name(s): | Publication: 2007- : [London] : BioMed Central; Original Publication: [Chicago, Ill. : University of Chicago, 2003]- |
| MeSH Terms: | Arthritis, Juvenile*/therapy ; Transition to Adult Care*/standards ; Caregivers*/psychology ; Delphi Technique* ; Consensus*; Parents/psychology ; Humans ; Adolescent ; Female ; Male ; Young Adult ; Adult ; Health Personnel |
| Abstract: | Background: The field of transitional care for chronic conditions in adolescents, notably juvenile idiopathic arthritis (JIA), is rapidly growing. Transitioning these patients to adult healthcare systems presents significant challenges in practical implementation. Consequently, it would be appropriate for each country to develop a transition program tailored to its specific infrastructure. To pursue this goal, a Delphi study was conducted to identify the key components of transitional care in JIA.; Methods: Three panels and two rounds were held consisting of adolescents and young adults, parents, and clinicians (pediatric or adult rheumatologists). As a result, feedback on acceptance of the key statements of transitional care was obtained using the Delphi method.; Results: Out of 102 contacted, 88 (86.3%) participants responded to the Round 1 survey, which included 48 clinicians, 20 youths, and 20 parents. In Round 2, the number of clinicians dropped to 29, while the number of youths and parents remained constant. Based on expert opinions, 29 statements were selected for the first round. Statements that received ≥ 70% approval in the first round advanced to the next round. Sixteen statements did not achieve ≥ 70% approval. Of the remaining, 12 were reviewed in the second round, while four were excluded.; Conclusion: Although consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon. Acceptance and applicability of the final 20-item checklist in clinical practice are critical for advancing JIA transition care in Turkey.; (© 2024. The Author(s).) |
| Competing Interests: | Declarations. Ethics approval and consent to participate: Kocaeli University Ethics Committee approved the study protocol and adhered to the principles of the Declaration of Helsinki (2023/297). Consent for publication: Not applicable. Competing interests: The authors declare that they have no competing interests. |
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| Contributed Indexing: | Keywords: Adolescent; Arthritis; Chronic disease; Delphi-study; Juvenile; Transition to adult care |
| Entry Date(s): | Date Created: 20241219 Date Completed: 20241219 Latest Revision: 20250104 |
| Update Code: | 20260130 |
| PubMed Central ID: | PMC11654283 |
| DOI: | 10.1186/s12969-024-01047-2 |
| PMID: | 39695685 |
| Database: | MEDLINE |
Journal Article