The process of co-design for a new anxiety intervention for autistic children.
| Title: | The process of co-design for a new anxiety intervention for autistic children. |
|---|---|
| Authors: | Cullingham T; Manchester University NHS Foundation Trust Manchester UK.; Rennard U; Expert by Experience.; Creswell C; Departments of Experimental Psychology and Psychiatry University of Oxford Oxford UK.; Milton D; Tizard Centre University of Kent Canterbury UK.; Buckle KL; Division of Psychology Communication and Human Neuroscience Faculty of Biology Medicine and Health University of Manchester Manchester UK.; Godber L; Expert by Experience.; Gordon K; Department of Neuropsychology Berkshire Healthcare NHS Foundation Trust Bracknell UK.; Larkin M; College of Health and Life Sciences Aston University Birmingham UK.; Green J; Manchester University NHS Foundation Trust Manchester UK.; Division of Psychology and Mental Health Faculty of Biology Medicine and Health University of Manchester Manchester UK. |
| Source: | JCPP advances [JCPP Adv] 2024 Aug 13; Vol. 5 (2), pp. e12255. Date of Electronic Publication: 2024 Aug 13 (Print Publication: 2025). |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: John Wiley & Sons, Inc Country of Publication: United States NLM ID: 9918250414706676 Publication Model: eCollection Cited Medium: Internet ISSN: 2692-9384 (Electronic) Linking ISSN: 26929384 NLM ISO Abbreviation: JCPP Adv Subsets: PubMed not MEDLINE |
| Imprint Name(s): | Original Publication: [Hoboken, NJ] : John Wiley & Sons, Inc., [2021]- |
| Abstract: | Background: Mental health difficulties are common for autistic people; however, almost no interventions have been co-designed with the autistic community. Co-design has the potential to add important insights from lived experience into intervention design, but there are currently limited examples of how rigorously to undertake this practice. This paper details a worked model of co-design and its process, focussed on adapting an evidenced parent-led intervention for non-autistic child anxiety (HYC), to meet the needs of young autistic children. The aim is to provide an example of co-design, integrating autistic, parental, academic, clinical, experience and expertise.; Methods: Using prior literature and theory, including Experience-Based Co-Design, we developed an iterative and collaborative process between the research team and an expert reference group (ERG). The research team comprised autistic and non-autistic members. The ERG included parents (autistic and non-autistic) of autistic children with anxiety problems, autistic adults with experience of anxiety problems, and clinicians with experience supporting autistic children with anxiety problems. The ERG and research team reviewed information from qualitative research interviews with autistic children with anxiety problems and their parents along with information from clinical experience and the academic literature to reach consensus on the adapted intervention design.; Results: The creation of a truly co-designed intervention that includes a neurodiversity-affirmative perspective, alongside CBT techniques. With anxiety problems experienced by autistic children being framed by combining the impacts of being neurodivergent in a neurotypical world, developmental science and well known cognitive behavioural models of child-anxiety.; Conclusion: Co-design can help to integrate multiple perspectives and result in the creation of interventions that are potentially relevant and acceptable to autistic people, their family members, and clinicians.; (© 2024 The Author(s). JCPP Advances published by John Wiley & Sons Ltd on behalf of Association for Child and Adolescent Mental Health.) |
| Competing Interests: | Cathy Creswell is the author of a book for parents used by clinical teams to deliver parent‐led CBT and she receives royalties from sales. Cathy Creswell is a developer of the OSI platform for digitally augmented parent‐led CBT but she does not receive any personal financial benefits from the use of OSI. No other authors declare conflict of interests. |
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| Grant Information: | 226603 United Kingdom WT_ Wellcome Trust; NIHR203495 United Kingdom DH_ Department of Health |
| Contributed Indexing: | Keywords: CBT; autism; child anxiety; co‐design; co‐production; neurodiversity; parent‐led intervention |
| Entry Date(s): | Date Created: 20250616 Latest Revision: 20251215 |
| Update Code: | 20260130 |
| PubMed Central ID: | PMC12159306 |
| DOI: | 10.1002/jcv2.12255 |
| PMID: | 40519955 |
| Database: | MEDLINE |
Journal Article