Stress, coping, protective factors, and quality of life in parents of infants with CHD: associations with state anxiety.
| Title: | Stress, coping, protective factors, and quality of life in parents of infants with CHD: associations with state anxiety. |
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| Authors: | Bainton J; Division of Cardiology, The Hospital for Sick Childrenhttps://ror.org/057q4rt57, Canada.; Trachtenberg FL; Carelon Research Inc, USA.; Freemon D; National Heart Lung and Blood Institute, USA.; Fremed MA; Division of Pediatric Cardiology, Department of Pediatrics, Columbia University Irving Medical Center, USA.; Division of Pediatric Cardiology, Department of Pediatrics, NewYork-Presbyterian Morgan Stanley Children's Hospital, USA.; Klingman E; Children's Healthcare of Atlanta Inc, USA.; Lambert LM; Cardiothoracic surgery, University of Utah Health, USA.; McCrary AW; Pediatrics, Duke University Hospital, USA.; McCrindle BW; Division of Cardiology, The Hospital for Sick Childrenhttps://ror.org/057q4rt57, Canada.; Rathge K; Heart Institute, Cincinnati Children's Hospital Medical Center, USA.; Sadhwani A; Boston Children's Hospital, USA.; Segar DE; Children's Wisconsin Herma Heart Institute, USA.; Shustak RJ; Division of Cardiology, The Children's Hospital of Philadelphia, USA.; Sood E; Cardiology, Nemours Children's Hospital Delaware, USA.; Uzark K; Pediatric Cardiology, University of Michigan Mott Children's Hospital, USA.; Votava-Smith JK; Children's Hospital Los Angeles, USA.; Woodard Kline F; Department of Pediatric Cardiology, Medical University of South Carolina, USA.; Mussatto KA; School of Nursing, Milwaukee School of Engineering, USA.; Children's Hospital of Wisconsin Inc, USA. |
| Source: | Cardiology in the young [Cardiol Young] 2026 Apr 06, pp. 1-15. Date of Electronic Publication: 2026 Apr 06. |
| Publication Model: | Ahead of Print |
| Publication Type: | Journal Article |
| Language: | English |
| Journal Info: | Publisher: Cambridge University Press Country of Publication: England NLM ID: 9200019 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1467-1107 (Electronic) Linking ISSN: 10479511 NLM ISO Abbreviation: Cardiol Young Subsets: MEDLINE |
| Imprint Name(s): | Publication: : Cambridge : Cambridge University Press; Original Publication: Chapel Hill, NC : World Publishers, c1991- |
| Abstract: | Introduction: The Family Adaptation study, ancillary to the Single Ventricle Reconstruction Trial, examined the prevalence of anxiety and its associations with stress, psychosocial factors, and quality of life measures in parents of infants who underwent the Norwood procedure.; Materials and Methods: Two hundred and fifteen parents (143 mothers and 72 fathers) of 146 infants completed state anxiety (State Anxiety Inventory), stress, psychosocial, and quality of life measures post-Norwood, post-Stage II, and at a final visit (median child age: 14 months).; Results: A substantial proportion of parents reported severe anxiety symptoms following the Norwood surgery, with 61% of mothers and 43% of fathers affected, decreasing over time to 46% and 33% by the final visit, respectively. Mothers' average STAI-S scores were significantly higher than fathers' post-Norwood (47.7 ± 13.2 versus 43.5 ± 11.8, p = 0.03), declining to 42.1 ± 13.0 versus 39.0 ± 9.6 (p = 0.14) at the final visit. Stress related to parenting a child with a serious illness was a stronger and more consistent predictor of mothers' anxiety over time (highest R2 = 0.49 for emotional distress), whereas insufficient coping and fewer protective factors were greater and more consistent predictors for fathers (highest R2 = 0.40 for mastery and health). Quality of life was a consistent predictor of state anxiety for both mothers and fathers.; Conclusion: Anxiety is elevated in parents of infants who underwent the Norwood procedure and is influenced by a complex interplay of stress, psychosocial factors, and quality of life. Addressing these factors is crucial for improving parents' mental health, which in turn promotes the well-being of the entire family. |
| Contributed Indexing: | Keywords: CHD; Norwood; anxiety; coping; parents; stress |
| Entry Date(s): | Date Created: 20260406 Latest Revision: 20260426 |
| Update Code: | 20260426 |
| PubMed Central ID: | PMC13107193 |
| DOI: | 10.1017/S1047951126111809 |
| PMID: | 41940517 |
| Database: | MEDLINE |
Journal Article