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Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder

Title: Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder
Language: English
Authors: Jashar, Dasal Tenzin; Fein, Deborah; Berry, Leandra N.; Burke, Jeffrey D.; Miller, Lauren E.; Barton, Marianne L.; Dumont-Mathieu, Thyde
Source: Journal of Autism and Developmental Disorders. May 2019 49(5):1763-1777.
Availability: Springer. Available from: Springer Nature. 233 Spring Street, New York, NY 10013. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-348-4505; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 15
Publication Date: 2019
Sponsoring Agency: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) (NIH)
Contract Number: R01HD039961
Document Type: Journal Articles; Reports - Research
Descriptors: Parent Attitudes; Satisfaction; At Risk Persons; Toddlers; Autism; Diagnostic Tests; Clinical Diagnosis; Severity (of Disability); Neurological Impairments; Ethnicity; Racial Differences; Minority Groups; Mothers; Educational Attainment; Parent Background; Family Income; Stress Variables; Pervasive Developmental Disorders
DOI: 10.1007/s10803-018-3851-z
ISSN: 0162-3257
Abstract: Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.
Abstractor: As Provided
Entry Date: 2019
Accession Number: EJ1213597
Database: ERIC