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The Educational Experiences of Autistic Children with and without Extreme Demand Avoidance Behaviours

Title: The Educational Experiences of Autistic Children with and without Extreme Demand Avoidance Behaviours
Language: English
Authors: Clare Truman (ORCID 0000-0003-4937-0793); Laura Crane; Patricia Howlin; Elizabeth Pellicano
Source: International Journal of Inclusive Education. 2024 28(1):57-77.
Availability: Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 21
Publication Date: 2024
Document Type: Journal Articles; Reports - Research
Descriptors: Autism Spectrum Disorders; Behavior Problems; Incidence; Students with Disabilities; Student Placement; Student Experience; Student Needs; Foreign Countries; Children; Adolescents; Clinical Diagnosis; Student Characteristics
Geographic Terms: United Kingdom
Assessment and Survey Identifiers: Strengths and Difficulties Questionnaire; Social Responsiveness Scale
DOI: 10.1080/13603116.2021.1916108
ISSN: 1360-3116; 1464-5173
Abstract: Extreme demand avoidance (EDA) is increasingly described as part of the autism spectrum and is sometimes diagnosed as Pathological Demand Avoidance (PDA). Yet little is known, about the educational experiences of children with and without EDA behaviours. Using an online survey collecting both quantitative and qualitative data, 211 parents reported on the school experiences of their autistic children. 57 parents had a child with an additional diagnosis of PDA (AUT-PDA); 91 had a child with no diagnosis of PDA but, according to parent report, displayed EDA behaviours (AUT-EDA); and 63 had a child with neither a PDA diagnosis nor EDA behaviours (AUT). Results demonstrated that there were few group differences in terms of the frequency of failed school placements and exclusions. However, children in the AUT-EDA/-PDA groups had higher levels of behaviour that challenges, which were particularly high in those with a PDA diagnosis. There were no significant differences in school exclusions, but the fact that these occurred across all groups is of concern. Qualitative results suggested overwhelmingly negative school experiences for all groups but especially the AUT-EDA and AUT-PDA groups. Parents attributed such experiences to misunderstanding of their children's diagnoses and a lack of targeted support.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1414770
Database: ERIC