| Title: |
A Qualitative Study of Adults' and Support Persons' Experiences of Support after Autism Diagnosis |
| Language: |
English |
| Authors: |
Yunhe Huang (ORCID 0000-0003-0961-8475); Samuel R. C. Arnold (ORCID 0000-0003-2900-223X); Kitty-Rose Foley; Julian N. Trollor |
| Source: |
Journal of Autism and Developmental Disorders. 2024 54(3):1157-1170. |
| Availability: |
Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Peer Reviewed: |
Y |
| Page Count: |
14 |
| Publication Date: |
2024 |
| Document Type: |
Journal Articles; Reports - Research |
| Descriptors: |
Adults; Autism Spectrum Disorders; Peer Relationship; Employment; Access to Education; Social Support Groups; Caring; Sense of Community; Self Actualization; Self Esteem |
| DOI: |
10.1007/s10803-022-05828-0 |
| ISSN: |
0162-3257; 1573-3432 |
| Abstract: |
Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families. |
| Abstractor: |
As Provided |
| Entry Date: |
2024 |
| Accession Number: |
EJ1415081 |
| Database: |
ERIC |