| Title: |
Tailored Psychoeducational Home Interventions for Children with a Chronic Illness: Families' Experiences |
| Language: |
English |
| Authors: |
Michele Capurso (ORCID 0000-0002-0044-626X); Gaetano Catalano; Anna Calvaruso; Annalinda Monticelli; Calogero Taormina; Samanta Battiato; Francesca Paola Guadagna; Tania Piccione; Paolo D’Angelo (ORCID 0000-0002-4021-8472); Delia Russo; Antonino Trizzino; Veronica Raspa (ORCID 0009-0004-2014-8704) |
| Source: |
Continuity in Education. 2024 5(1):1-21. |
| Availability: |
Ubiquity Press. Ubiquity Press Ltd, Unit 3N, 6 Osborn Street, London, E1 6TD, United Kingdom. Tel: +44 (0)2073230343; e-mail: editorial@ubiquitypress.com; Web site: https://www.ubiquitypress.com/ |
| Peer Reviewed: |
Y |
| Page Count: |
21 |
| Publication Date: |
2024 |
| Document Type: |
Journal Articles; Reports - Research |
| Descriptors: |
Chronic Illness; Home Programs; Psychoeducational Methods; Family Programs; Services; Community Programs; Access to Health Care; Family Attitudes; Family Needs; Foreign Countries; Child Health; Well Being |
| Geographic Terms: |
Italy |
| ISSN: |
2631-9179 |
| Abstract: |
The quality of life for a child with a chronic illness depends on various factors, including the illness's severity, medical treatments, psychosocial and educational support, resource availability, and community involvement. These biopsychosocial factors become significant when the child receives care at home. This article presents and evaluates a highly personalized support project offered to 40 Sicilian families, consisting of educational, social, and psychological services delivered at the families homes and in their communities. Guided by the Psychosocial Assessment Tool (PAT) and the Functional Psychology framework, the project employed a family-focused approach to healthcare and was based on a continuous dialogue between all stakeholders. The project was evaluated through a qualitative interview with eight families in the Palermo area, which was analyzed using consensual qualitative research. Results revealed families' appreciation of the project and the importance of a professional who listened to their needs, provided a connection with the medical team, and tailored activities inside and outside the home. The ability of professionals to listen and adapt activities to different contexts and needs was crucial for the project's success. We conclude that creating tailored family-level interventions with an educator acting as a liaison with the medical team is a widely acceptable strategy that should be further developed and investigated. |
| Abstractor: |
As Provided |
| Entry Date: |
2024 |
| Accession Number: |
EJ1448115 |
| Database: |
ERIC |