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Racial and Ethnic Group Differences in Service Utilization in Children with Autism Spectrum Disorder: The Role of Parental Stigma

Title: Racial and Ethnic Group Differences in Service Utilization in Children with Autism Spectrum Disorder: The Role of Parental Stigma
Language: English
Authors: Karla Rivera-Figueroa; Stephanie Milan; Thyde Dumont-Mathieu; Diane Quinn; Inge-Marie Eigsti (ORCID 0000-0001-7898-1898)
Source: Autism: The International Journal of Research and Practice. 2025 29(5):1171-1183.
Availability: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Peer Reviewed: Y
Page Count: 13
Publication Date: 2025
Sponsoring Agency: National Institute of Mental Health (NIMH) (DHHS/NIH)
Contract Number: R01MH11268701A1
Document Type: Journal Articles; Reports - Research
Descriptors: Racial Differences; Ethnicity; Autism Spectrum Disorders; Parent Attitudes; Social Bias; Minority Groups; Access to Health Care; Socioeconomic Influences
DOI: 10.1177/13623613241298043
ISSN: 1362-3613; 1461-7005
Abstract: Racial and ethnic disparities in service utilization in autism are widely documented. Autism-related parental stigma may play a role if parents from racial/ethnic minoritized backgrounds experience dual stigma from autism and from membership in a marginalized group. This study examines racial/ethnic differences in autism-related stigma and compares the impact of stigma on service utilization in a large, diverse sample of US-based parents of autistic children (final sample = 764; White 41.6%, Black 16.6%, Latino/a/x/Hispanic 20.9%, Asian 7.5%, Multiracial 9.6%, Native American 1.8%, Pacific Islander 0.5%, Middle Eastern 0.2%, and Other 0.2%). Parents completed online surveys assessing affiliate and community stigma, service utilization, and perceived unmet treatment needs. Small but significant racial/ethnic group differences emerged in some aspects of stigma and service utilization. Specifically, Asian and Latino/a/x parents were less likely to fully engage in recommended services; Asian parents endorsed less service availability; Latino/a/x and multiracial parents reported more unmet needs; and Asian and White parents reported significantly more affiliate stigma. There was little indication that stigma contributed to racial/ethnic differences in service utilization, except for Asian families. Results indicate that socioeconomic factors interact with race/ethnicity to impact service use and stigma.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1469228
Database: ERIC