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Prevalence and Characteristics of Adolescents with Autism Spectrum Disorder in the New York-New Jersey Metropolitan Area

Title: Prevalence and Characteristics of Adolescents with Autism Spectrum Disorder in the New York-New Jersey Metropolitan Area
Language: English
Authors: Walter Zahorodny (ORCID 0000-0001-9050-8796); Josephine Shenouda; Kate Sidwell; Michael G. Verile; Cindy Cruz Alvarez; Arline Fusco; Audrey Mars; Mildred Waale; Tara Gleeson; Gail Burack; Paul Zumoff
Source: Journal of Autism and Developmental Disorders. 2025 55(6):2043-2049.
Availability: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 7
Publication Date: 2025
Document Type: Journal Articles; Reports - Research
Descriptors: Autism Spectrum Disorders; Incidence; Adolescents; Symptoms (Individual Disorders); Gender Differences; Socioeconomic Status; Racial Differences; Ethnicity; Comorbidity; Individual Characteristics
Geographic Terms: New Jersey
DOI: 10.1007/s10803-023-06058-8
ISSN: 0162-3257; 1573-3432
Abstract: Purpose: Almost all epidemiologic studies estimating autism spectrum disorder (ASD) prevalence have focused on school-age children. This study provides the first population-based data on the prevalence and expression of ASD among adolescents in a large US metropolitan region. Methods: Active multiple source ASD surveillance of adolescents aged 16-years was conducted according to the Autism and Developmental Disabilities Monitoring (ADDM) Network method in a four-county New Jersey metropolitan region. Prevalence estimates are provided, characteristics are described and comparison of the distribution and characteristics of ASD is offered for this cohort, at 8 and 16-years. Results: ASD prevalence was 17.7 per 1000 (95% CI: 16.3-19.2)]. One-in-55 males and one in 172 females were identified with ASD. High-SES was positively associated with ASD and White adolescents had higher ASD prevalence (22.2 per 1000) than Hispanic adolescents (13.1 per 1000). One in four study-confirmed individuals with ASD did not have an ASD diagnosis. A majority of ASD adolescents (58.8%) had a co-occurring neuropsychiatric disorder. White and High-SES individuals had greater likelihood of co-occurring disorder. The demographic distribution and functional profile of ASD was similar in this cohort at 8 and 16-years. Conclusion: Approximately one-in-55 adolescents in our area had ASD, in 2014, and one-in-4 16-year-olds with ASD was not diagnosed. A majority (3-in-5) of the adolescents with ASD had a co-occurring neuropsychiatric disorder. ASD under-identification and the high frequency of co-disorders in adolescents with ASD pose significant challenges to care and support.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1470805
Database: ERIC