| Title: |
'Building Our Own House' as an Insider-Only Community-Partnered Participatory Research Council: Co-Creating a Safe Space for Autistic Knowledge Production |
| Language: |
English |
| Authors: |
Gemma L. Williams (ORCID 0000-0002-5162-0440); Rebecca Ellis (ORCID 0000-0002-7761-468X); Willow Holloway; Selena Caemawr; Monique Craine; Kathryn Williams (ORCID 0000-0001-7274-3493); Aimee Grant (ORCID 0000-0001-7205-5869) |
| Source: |
Autism: The International Journal of Research and Practice. 2025 29(9):2205-2215. |
| Availability: |
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: |
Y |
| Page Count: |
11 |
| Publication Date: |
2025 |
| Document Type: |
Journal Articles; Reports - Research |
| Descriptors: |
Autism Spectrum Disorders; Community Organizations; Community Study; Community Leaders; Researchers; Participatory Research; Safety; Cooperation |
| DOI: |
10.1177/13623613241253014 |
| ISSN: |
1362-3613; 1461-7005 |
| Abstract: |
This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings -- involving four Autistic community leader members and three Autistic researchers -- was to (1) guide the start of the project and the development of accessible recruitment materials for the future eight lay members and (2) establish a safe space and a model of accessible communication. We draw on extracts from transcripts made during meetings, member 'field' notes and a reflexive co-writing practice to identify the ways in which a sense of safety was built during these first community council meetings. We explore what it means to be an "insider"-only Community Partnered Participatory Research Council and reflect on the praxis we developed to facilitate Autistic knowledge production. |
| Abstractor: |
As Provided |
| Entry Date: |
2025 |
| Accession Number: |
EJ1479948 |
| Database: |
ERIC |