| Title: |
Exploring the Experiences of Caring for a Family Member with Intellectual Disabilities Displaying Behaviours That Challenge and/or Mental Health Difficulties within the United Kingdom: A Meta-Ethnographic Review |
| Language: |
English |
| Authors: |
Lucy Yates (ORCID 0000-0002-4639-969X); Andrea Flood; Grace Talbot; Alys Wyn Griffiths (ORCID 0000-0001-9388-9168) |
| Source: |
Journal of Applied Research in Intellectual Disabilities. 2026 39(2). |
| Availability: |
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Peer Reviewed: |
Y |
| Page Count: |
16 |
| Publication Date: |
2026 |
| Document Type: |
Journal Articles; Information Analyses |
| Descriptors: |
Foreign Countries; Caregivers; Family Role; Intellectual Disability; Behavior Problems; Mental Disorders; Caregiver Role; Stress Variables; Well Being; Needs; Barriers |
| Geographic Terms: |
United Kingdom |
| DOI: |
10.1111/jar.70226 |
| ISSN: |
1360-2322; 1468-3148 |
| Abstract: |
Introduction: This review aims to synthesise qualitative literature of experiences of caregiving for family members with intellectual disabilities displaying behaviours that challenge and/or mental health difficulties, within the United Kingdom. Method: Following Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines, five electronic databases (APA PsychInfo, Web of Science, PubMed, MedLine and CINAHL) were systematically searched. Analysis followed a meta-ethnographic approach. Results: Fourteen studies were included. Three key themes and a line of argument were developed: (i) Carers Wear Many Hats; (ii) Square Services, Round Needs; (iii) A Journey of Many Lows and Some Highs. Conclusions: Carers highlighted psychosocial strains of the multi-faceted caregiving roles--including advocacy, education and protection. One-size-fits-all approaches meant support services were more burdensome than helpful, leaving carers feeling powerless and marginalised, with limited reports of good practice. The findings can inform care services about supporting these families and individuals with idiosyncratic and intersecting needs. |
| Abstractor: |
As Provided |
| Entry Date: |
2026 |
| Accession Number: |
EJ1504110 |
| Database: |
ERIC |