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Fetal Alcohol Spectrum Disorder Diagnostic Clinics in Canada: 'It Wouldn't Happen if Nobody Wanted It to Happen'

Title: Fetal Alcohol Spectrum Disorder Diagnostic Clinics in Canada: 'It Wouldn't Happen if Nobody Wanted It to Happen'
Language: English
Authors: Kelly D. Harding (ORCID 0000-0001-8996-8058); Katherine Flannigan (ORCID 0000-0001-7230-2532); Colleen Burns; Kathy Unsworth; Audrey McFarlane
Source: Journal of Intellectual & Developmental Disability. 2026 51(1):115-125.
Availability: Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 11
Publication Date: 2026
Document Type: Journal Articles; Reports - Research; Tests/Questionnaires
Descriptors: Fetal Alcohol Syndrome; Clinical Diagnosis; Clinics; Program Development; Needs; Community Involvement; Teamwork; Coordinators; Cooperation; Foreign Countries
Geographic Terms: Canada
DOI: 10.3109/13668250.2025.2508619
ISSN: 1366-8250; 1469-9532
Abstract: Background: We address the question: If you wanted to start a fetal alcohol spectrum disorder (FASD) diagnostic clinic, what would you need to do, think about, and plan for, from a policy perspective? Our aims were to understand how clinics are developed and established and the key factors that facilitate their success. Method: Within a pragmatist epistemology, we conducted a basic qualitative study using semistructured interviews. Interviews were conducted with 12 key informants from 10 diagnostic clinics. Data were analysed using iterative thematic analysis. Results: We derived five themes pertaining to our objectives: (i) listening and responding to your community; (ii) community buy-in and practical steps; (iii) multidisciplinary team trust, respect, and collaboration; (iv) the clinic coordinator; and (v) promoting uniqueness and learning from each other. Conclusions: Our findings demonstrated the importance of local, community-based planning, team cohesion, and opportunities for mentorship in the development of new FASD clinical services.
Abstractor: As Provided
Entry Date: 2026
Accession Number: EJ1505391
Database: ERIC