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Navigating the life stage after stroke:From Life 2.0 to stroke prevention models of care — A qualitative exploration of younger and middle-aged adult stroke patients' experiences and recommendations

Title: Navigating the life stage after stroke:From Life 2.0 to stroke prevention models of care — A qualitative exploration of younger and middle-aged adult stroke patients' experiences and recommendations
Authors: Ibrahim,Sarah; D'Amico,Danielle; Zhang,Lindsey; Hashmi,Syeda; Verven,Angela; Ng,Sharon; Francis,Troy; Stanimirovic,Aleksandra; Senff, Jasper R.; Singh,Sanjula; Rosand,Jonathan; Casaubon,Leanne K.; Sivakumar,Keithan; Rac,Valeria; Pikula,Aleksandra; Projectafdeling CVZ
Publication Year: 2025
Subject Terms: Experience; Qualitative research; Stroke; Younger and middle-aged adults; Medicine (miscellaneous); Health Policy; Public Health; Environmental and Occupational Health
Description: Background: Global stroke incidence has been rising among adults 65 years of age or younger. A dearth of research exists exploring and understanding younger and middle-aged adults’ lifestyle-related knowledge and habits along with associated facilitators and/or barriers with the adoption, maintenance, and support needs for development of new brain health interventions, which this study sought to address. Methods: A qualitative study was conducted, followed by virtual, semi-structured focus groups. Data collection and analysis were performed using Goffman's dramaturgical theory to guide the inductive thematic data analysis. Results: A total of 12 participants comprised the sample. Four themes emerged: 1) Front stage: Life 2.0, 2) Back stage: Unseen and invisible challenges, 3) Scripts and audience reaction: Dualism of social influence; and 4) Setting: Standard of care, but to who's standard? Conclusion: Findings contributed to a deeper understanding of factors influencing the adoption of healthy habits and approaches to reconceptualize and re-design brain health interventions that meet the needs, preferences, and priorities of this population.
Document Type: article in journal/newspaper
File Description: application/pdf
Language: English
Relation: https://dspace.library.uu.nl/handle/1874/467379
Availability: https://dspace.library.uu.nl/handle/1874/467379
Rights: info:eu-repo/semantics/OpenAccess
Accession Number: edsbas.1F053141
Database: BASE