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Sostenere il percorso in una patologia complessa: il ruolo dello psicologo nella gestione multidisciplinare della malattia del rene policistico (Supporting complexity: the psychologist’s role in multidisciplinary management of polycystic kidney disease).

Title: Sostenere il percorso in una patologia complessa: il ruolo dello psicologo nella gestione multidisciplinare della malattia del rene policistico (Supporting complexity: the psychologist’s role in multidisciplinary management of polycystic kidney disease).
Authors: Sara Farinone; Martina Catania; Liliana Italia De Rosa; Kristiana Kola; Micaela Petrone; Matteo Brambilla Pisoni; Andrea Gigliotti; Pierpaolo Bianca; Paola Maiucchi; Lorena Citterio; Paola Carrera; Giulia Mancassola; Gaia Perego; Francesca Milano; Valentina Elisabetta Di Mattei; Paolo Manunta; Giuseppe Vezzoli; Maria Teresa Sciarrone Alibrandi
Contributors: Farinone, Sara; Catania, Martina; De Rosa, Liliana Italia; Kola, Kristiana; Petrone, Micaela; Brambilla Pisoni, Matteo; Gigliotti, Andrea; Bianca, Pierpaolo; Maiucchi, Paola; Citterio, Lorena; Carrera, Paola; Mancassola, Giulia; Perego, Gaia; Milano, Francesca; Di Mattei, Valentina Elisabetta; Manunta, Paolo; Vezzoli, Giuseppe; Teresa Sciarrone Alibrandi, Maria
Publisher Information: AboutScience Srl
Publication Year: 2024
Subject Terms: ADPKD; Patient’s support; Autosomal Dominant Polycystic Kidney Disease; Psychological impact
Description: Autosomal dominant polycystic kidney disease (ADPKD) is the most common genetic kidney disease. It is characterized by the formation of cysts in kidneys. This condition has a significant impact on people’s lives. It causes not only physical suffering but also psychological suffering. People with ADPKD may experience psychological distress, depending on their personal and health conditions. The inability to accept or adapt to the disease and its resulting changes causes individuals difficulties that appear in different levels of their lives: intrapersonal, interpersonal, social, and occupational. In the context of ADPKD, the psychologist is involved both at clinical and research levels. The psychologist has a crucial role in supporting patients by assessing how they react to the disease, to its related limitations, and to the resulting disabilities. The proposal of psychological support, considered as an intervention instrument, is helpful both at the diagnostic stage and in follow-up, as the disease worsens. The support aims to encourage acceptance and adaptation to the disease, process changes, and physical and mental consequences.
Document Type: article in journal/newspaper
Language: English; Italian
Relation: volume:36; firstpage:36; lastpage:40; numberofpages:5; journal:GIORNALE DI CLINICA NEFROLOGICA E DIALISI; https://hdl.handle.net/20.500.11768/169417; https://journals.aboutscience.eu/index.php/gcnd/article/view/3065?_gl=1*10xz1*_up*MQ.*_ga*MTE0ODAyOTMxLjE3Mjg1NDQ1ODg.*_ga_K8HKFQPHBN*MTcyODU0NDU4Ny4xLjAuMTcyODU0NDU4Ny4wLjAuMA.
Availability: https://hdl.handle.net/20.500.11768/169417; https://journals.aboutscience.eu/index.php/gcnd/article/view/3065?_gl=1*10xz1*_up*MQ.*_ga*MTE0ODAyOTMxLjE3Mjg1NDQ1ODg.*_ga_K8HKFQPHBN*MTcyODU0NDU4Ny4xLjAuMTcyODU0NDU4Ny4wLjAuMA.
Rights: info:eu-repo/semantics/openAccess ; license:Creative commons ; license uri:http://creativecommons.org/licenses/by-nc/4.0/
Accession Number: edsbas.4994AA25
Database: BASE