| Title: |
Muscle disorders * 111. The impact of fatigue in patients with idiopathic inflammatory myopathy: a mixed method study |
| Authors: |
Campbell, Richard; Hofmann, Darija; Hatch, Stephani; Gordon, Patrick; Lempp, Heidi; Das, Leena; Blumbergs, Peter; Limaye, Vidya; Vermaak, Erin; McHugh, Neil; Edwards, Mark H.; Jameson, Karen; Sayer, Avan Aihie; Dennison, Elaine; Cooper, Cyrus; Salvador, Fernando B.; Huertas, Carolina; Isenberg, David; Jackson, Elizabeth J.; Middleton, Annie; Churchill, Duncan; Walker-Bone, Karen; Worsley, Peter R.; Mottram, Sarah; Warner, Martin; Morrissey, Dylan; Gadola, Stephan; Carr, Andrew; Stokes, Maria; Srivastava, Rajeshwar N.; Sanghi, Divya; Elbaz, Avi; Mor, Amit; Segal, Ganit; Drexler, Michael; Norman, Doron; Peled, Eli; Rozen, Nimrod; Goryachev, Yulia; Debbi, Eytan M.; Haim, Amir; Wolf, Alon; Debi, Ronen; Cohen, Marc S.; Igolnikov, Ilya; Bar Ziv, Yaron; Benkovich, Vadim; Bernfeld, Benjamin; Collins, John; Moots, Robert J.; Clegg, Peter D.; Milner, Peter I.; Ejtehadi, Hora D.; Nelson, Paul N.; Wenham, Claire; Balamoody, Sharon; Hodgson, Richard; Conaghan, Philip; Wilkie, Ross; Blagojevic, Milisa; Jordan, Kelvin P.; Mcbeth, John; Peffers, Mandy J.; Beynon, Robert J.; Thornton, David J.; Chapman, Rebecca; Chapman, Victoria; Walsh, David; Kelly, Sara; Hui, Michelle; Zhang, Weiya; Doherty, Sally; Rees, Frances; Muir, Kenneth; Maciewicz, Rose; Doherty, Michael; Snelling, Sarah; Davidson, Rose K.; Swingler, Tracey; Price, Andrew; Clark, Ian; Stockley, Elizabeth; Hathway, Gareth; Faas, Henryk; Auer, Dorothee; Hirsch, George; Hale, Elizabeth; Kitas, George; Klocke, Rainer; Abraham, Ajay; Pearce, Mark S.; Mann, Kay D.; Francis, Roger M.; Birrell, Fraser; Tucker, Marian; Mellon, Stephen J.; Jones, Luke; Price, Andrew J.; Dieppe, Paul A.; Gill, Harinderjit S.; Ashraf, Sadaf; Walsh, David A.; McCollum, David; McCabe, Candy; Grieve, Sharon; Shipley, Jacqueline; Gorodkin, Rachel; Oldroyd, Alexander G.; Evans, Bronwen; Greenbank, Cathi; Bukhari, Marwan; Rajak, Rizwan; Bennett, Cheryl; Williams, Ann; Martin, James C.; Abdulkader, Rita; MacNicol, Carolyn; Brixey, Karen; Stephenson, Sonya; Clunie, Gavin; Andrews, Rebecca N.; Clark, Emma M.; Gould, Virginia C.; Carter, Louise; Morrison, Leigh; Tobias, Jon H.; Pye, Stephen R.; Vanderschueren, Dirk; O'Neill, Terence W.; Lee, David M.; Jans, Ivo; Billen, Jaak; Gielen, Evelien; Laurent, Michael; Claessens, Frank; Adams, Judith E.; Ward, Kate A.; Bartfai, Gyorgy; Casanueva, Felipe; Finn, Joseph D.; Forti, Gianni; Giwercman, Aleksander; Han, Thang S.; Huhtaniemi, Ilpo; Kula, Krzysztof; Lean, Michael E.; Pendleton, Neil; Punab, Margus; Wu, Frederick C.; Boonen, Steven; Mercieca, Cecilia; Webb, Jackie; Bhalla, Ashok; Fairbanks, Sue; Moss, Katie E.; Collins, Catherine; Sedgwick, Philip; Parker, Joshua; Greenbank, Cathy; Harvey, Nicholas C.; Cole, Zoe A.; Crozier, Sarah R.; Ntani, Georgia; Mahon, Pam A.; Robinson, Sian M.; Inskip, Hazel M.; Godfrey, Keith M.; Dennison, Elaine M.; Bridges, Matthew; Ruddick, Sheila; Holroyd, Christopher R.; Mahon, Pam; Godfrey, Keith; McNeilly, Thomas; McNally, Collette; Beringer, Tim; Finch, Michael; Coda, Andrea; Davidson, Joyce; Walsh, Jo; Fowlie, Peter; Carline, Tom; Santos, Derek; Patil, Pravin; Rawcliffe, Christine; Olaleye, Abigail; Moore, Samantha; Fox, Amy; Sen, Debajit; Ioannou, Yiannis; Nisar, Sohail; Rankin, Kenneth; Birch, Mark; Finnegan, Sorcha; Rooney, Madeleine; Gibson, David S.; Malviya, Ajay; Ferris, Calum M.; Rushton, Stephen P.; Foster, Helen E.; Hanson, Helen; Muthumayandi, Karthik; Deehan, David J.; Birt, Linda; Poland, Fiona; MacGregor, Alexander; Armon, Kate; Pfeil, Michael; McErlane, Flora; Beresford, Michael W.; Baildam, Eileen M.; Thomson, Wendy; Hyrich, Kimme; Chieng, Alice; Gardner-Medwin, Janet; Lunt, Mark; Wedderburn, Lucy; Newell, Keri; Evans, Alexandra; Manning, Gwen; Scaife, Caitriona; McAllister, Catherine; Pennington, Stephen R.; Duncan, Mark; Moore, Terry; Pericleous, Charis; Croca, Sara C.; Giles, Ian; Alber, Karim; Yong, Harry; Midgely, Angela; Rahman, Anisur; Rzewuska, Magdalena; Mallen, Christian; Strauss, Vicky Y.; Belcher, John; Peat, George; Byng-Maddick, Rachel; Wijendra, Madhavi; Penn, Henry; Roddy, Edward; Muller, Sara; Hayward, Richard; Kamlow, Fawzi; Pakozdi, Angela; Jawad, Ali; Green, Daniel J.; Hider, Sam L.; Singh Bawa, Sarabjit; Bawa, Sandeep; Turton, Ailie; Palmer, Mark; Lewis, Jenny; Moss, Tim; Goodchild, Claire E.; Tang, Nicole; Scott, David; Salkovskis, Paul; Selvan, Shilpa; Williamson, Lyn; Thalayasingam, Nishanthi; Higgins, Matthew; Saravanan, Vadivelu; Rynne, Martin; Hamilton, Jennifer D.; Heycock, Carol; Kelly, Clive; Norton, Sam; Sacker, Amanda; Done, John; Young, Adam; Smolen, Josef S.; Fleischmann, Roy M.; Emery, Paul; van Vollenhoven, Ronald F.; Guérette, Benoît; Santra, Sourav; Kupper, Hartmut; Redden, Laura; Kavanaugh, Arthur; Keystone, Edward C.; van der Heijde, Desiree; Weinblatt, Michael E.; Mozaffarian, Neelufar; Liu, Shufang; Zhang, Natalie; Wilkinson, Sarah; Riaz, Mehmmod; Ostor, Andrew J.; Nisar, Muhammad K.; Burmester, G.; Mariette, X.; Navarro-Blasco, F.; Oezer, U.; Kary, S.; Unnebrink, K.; Kupper, H.; Jobanputra, Paresh; Maggs, Fiona; Deeming, Alison; Carruthers, David; Rankin, Elizabeth; Jordan, Alison; Faizal, Abdul; Goddard, Carolyn; Pugh, Mark; Bowman, Simon; Brailsford, Sue; Nightingale, Peter; Tugnet, Nicola; Cooper, Sheldon C.; Douglas, Karen M.; Edwin Lim, Chong Seng; Bee Lian Low, Samantha; Joy, Clayton; Hill, Lynne; Davies, Paul; Mukherjee, Sandeep; Cornell, Patricia; Westlake, Sarah L.; Richards, Selwyn; Rahmeh, Fouz; Thompson, Paul W.; Breedveld, Ferdinand; Keystone, Edward; Landewé, Robert; McIlraith, Melissa; Dharmapalaiah, Chethana; Shand, L.; Rose, Ginny; Watts, Richard; Eldashan, Amr; Dasgupta, Bhaskar; Borg, Frances A.; Bell, Gillian M.; Anderson, Amy E.; Harry, Rachel A.; Stoop, Jeroen N.; Hilkens, Catharien M.; Isaacs, John; Dickinson, Anne; McColl, Elaine; Banik, Snehashish; Smith, Lorna; France, Janice; Rutherford, Andrew; Scott Russell, Ann; Smith, Jacqueline; Jassim, Imad; Withrington, Robin; Bacon, Pauline; De Lord, Denise; McGregor, Laura; Morrison, Islay; Stirling, Anne; Porter, Duncan R.; Saunders, Sarah A.; Else, Sara; Semenova, Olga; Thompson, Helen; Ogunbambi, Olabambo; Kallankara, Sathish; Baguley, Elaine; Patel, Yusuf; Alzabin, Saba; Abraham, Sonya; Taher, Taher E.; Palfeeman, Andrew; Hull, Dobrina; McNamee, Kay; Pathan, Ejaz; Kinderlerer, Anne; Taylor, Peter; Williams, Richard O.; Mageed, Rizgar A.; Iaremenko, Oleg; Mikitenko, Ganna; Ferrari, Mathieu; Kamalati, Tahereh; Pitzalis, Costantino; Pearce, Fiona; Tosounidou, Sofia; Obrenovic, Karen; Erb, Nicola; Packham, Jonathan; Sandhu, Ravinder; White, Catherine; Cardy, Caroline M.; Justice, Elizabeth; Frank, Madeline; Li, Lisa; Lloyd, Mark; Ahmed, Ayesha; Readhead, Samantha; Ala, Aftab; Fittall, Matthew; Manson, Jessica; Sibilia, Jean; Marc Flipo, René; Combe, Bernard; Gaillez, Corine; Le Bars, Manuela; Poncet, Coralie; Elegbe, Ayanbola; Westhovens, Rene; Hassanzadeh, Roya; Mangan, Clodagh; Weinblatt, M. E.; Fleischmann, R.; van Vollenhoven, R.; Emery, P.; Huizinga, T. W. J.; Goldermann, R.; Duncan, B.; Timoshanko, J.; Luijtens, K.; Davies, O.; Dougados, M.; Hewitt, Jamie; Owlia, Mohammadbagher; Dougados, Maxime; Schiff, Michael; Alten, Rieke; Kaine, Jeffrey L.; Nash, Peter T.; Delaet, Ingrid; Qi, Keqin; Genovese, Mark C.; Clark, Judith; Kardash, Sally; Wong, Ernest; Hull, Richard; McCrae, Fiona; Shaban, Ragai; Thomas, Lynn; Young-Min, Steven; Ledingham, Joanna; Covarrubias Cobos, Arturo; Leon, Gustavo; Mysler, Eduardo F.; Keiserman, Mauro W.; Valente, Robert M.; Abraham Simon Campos, J.; Porawska, Wieslawa; Box, Jane H.; Legerton, Clarence W.; Nasonov, Evgeny L.; Durez, Patrick; Pappu, Ramesh; Teng, Julie; Edwards, Christopher J.; Arden, Nigel; Campbell, Jennifer; van Staa, Tjeerd; Housden, Claire; Sargeant, Ify; Choy, Ernest; McAuliffe, Sandra; Roberts, Kirsty; Sarzi-Puttini, Piercarlo; Andrianakos, Alexandros; Sheeran, Thomas P.; Choquette, Denis; Finckh, Axel; Desjuzeur, Marie-Laetitia; Gemmen, Eric K.; Mpofu, Chiedzo; Gottenberg, Jacques-Eric; Shah, Preeti; Cox, Maureen; Nye, Alan; OBrien, Anne; Jones, Peter; Jones, Gareth T.; Paudyal, Priya; MacPherson, Hugh; Sim, Julius; Doherty, Mike; Ernst, Edzard; Fisken, Margaret; Lewith, George; Tadman, Jane; Macfarlane, Gary J.; Bertin, P.; Arendt, C.; Terpstra, I.; VanLunen, B.; de Longueville, M.; Zhou, Honghui; Cai, Ann; Lacy, Eilyn; Kay, Jonathan; Keystone, Ed; Matteson, Eric; Hu, Chuanpu; Hsia, Elizabeth; Doyle, Mittie; Rahman, Mahboob; Shealy, David; Scott, David L.; Ibrahim, Fowzia; Abozaid, Hanan; Hassell, Andrew; Plant, Michael; Walker, David; Simpson, Gemma; Kowalczyk, Anna; Prouse, Peter; Brown, Andrew; George, Mano; Kumar, Namita; Mackay, Kirsten; Marshall, Samantha; Ludivico, Charles L.; Murthy, Bindu; Corbo, Michael; Samborski, W.; Berenbaum, F.; Davies, Owen; Ambrugeat, J.; Bennett, B.; Burkhardt, H.; Bykerk, Vivian; Román Ivorra, José; Wollenhaupt, Jurgen; Stancati, Andrea; Bernasconi, Corrado; Scott, David G I.; Claydon, Pearl; Ellis, Corrinne; Buchan, Scot; Pope, Janet; Fleischmann, Roy; Bingham, Clifton O.; Massarotti, Elena M.; Wollenhaupt, J.; Coteur, Geoffroy; Weinblatt, Michael; Ball, Catherine; Ainsworth, Tom; Kermik, Jyri; Woodham, Jonathan; Haq, Inam; Quesada-Masachs, Estefania; Carolina Diaz, Ana; Avila, Gabriela; Acosta, Isabel; Sans, Xavier; Alegre, Cayetano; Marsal, Sara; McWilliams, Dan; Kiely, Patrick D.; Bolce, Rebecca; Wang, Jianping; Ingham, Mike; Dehoratius, Ralph; Decktor, Dennis; Rao, Vijay; Pavlov, Andrey; Klearman, Micki; Musselman, Dave; Giles, Jon; Bathon, Joan; Sattar, Naveed; Lee, Janet; Baxter, Derek; McLaren, John S.; Gordon, Margaret-Mary; Thant, Kyaw Z.; Williams, Emma L.; Earl, Susannah; White, Paula; Williams, Julie; Jan, Adnan K.; Bhatti, Azher I.; Stafford, Catriona; Carolan, Martina; Ramakrishnan, Sekharipuram A. |
| Publisher Information: |
Oxford University Press |
| Publication Year: |
2012 |
| Collection: |
HighWire Press (Stanford University) |
| Subject Terms: |
POSTER VIEWING II (WEDNESDAY 2 MAY 2012) |
| Description: |
Background: Fatigue is a core symptom of idiopathic inflammatory myopathies (IIM) and impacts on quality of life more than any other common symptom according to findings from our past research project. Due to the subjective nature of fatigue and the lack of evidence-based therapies currently available, the symptom is often overlooked. Generic questionnaires such as FACIT-F show good reliability and validity, however, disease-specific tools are not currently available. The purpose of this study is to explore the symptoms of fatigue with patients beyond the confines of generic questionnaires. Methods: A purposive sample of 14 patients (stratified by gender, ethnicity, age, disease duration) with IIM were recruited from a tertiary outpatient clinic and invited to an interview study in person or via telephone, including the completion of two fatigue questionnaires (Facit-F and Fatigue Severity Scales). Patients invited to take part had already been identified as experiencing fatigue in a previous study. Content analysis of the transcribed interviews and single counting were applied to identify themes. Results: Transcripts from interviews were available from 12 patients (8 female; mean age 55.5 (SD 12.68) with mean disease duration of 5.3 (SD 4.0) years). 6 were retired, 5 in full time employment and 1 in part time employment. Mean FACIT-F for the group was 24.6 (SD 13.3) and fatigue severity scale 4.7 (SD 1.5). The following six themes emerged: 1) Fatigue characteristics (e.g. lack of refreshment with rest or sleep, fluctuation of severity and predictability; 2) Exacerbating factors (e.g. low mood, sleep disturbance); 3) Impact on life (e.g. compromised work productivity, social and family commitments; 4) Coping strategies (e.g. pacing, planning ahead; 5) Communication with clinic staff re. fatigue (e.g. perceived lack of sympathy, availability of effective treatment); 6) Communication with family/friends (e.g. underplaying symptoms, seeking support). Conclusions: The results show that IIM fatigue, (as in other ... |
| Document Type: |
text |
| File Description: |
text/html |
| Language: |
English |
| Relation: |
http://rheumatology.oxfordjournals.org/cgi/content/short/51/suppl_3/iii93; http://dx.doi.org/10.1093/rheumatology/kes109 |
| DOI: |
10.1093/rheumatology/kes109 |
| Availability: |
http://rheumatology.oxfordjournals.org/cgi/content/short/51/suppl_3/iii93; https://doi.org/10.1093/rheumatology/kes109 |
| Rights: |
Copyright (C) 2012, British Society for Rheumatology |
| Accession Number: |
edsbas.4D80055A |
| Database: |
BASE |