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The global epidemiology and health burden of the autism spectrum: findings from the Global Burden of Disease Study 2021

Title: The global epidemiology and health burden of the autism spectrum: findings from the Global Burden of Disease Study 2021
Authors: Damian F Santomauro; Holly E Erskine; Ana M Mantilla Herrera; Paul Anthony Miller; Jamileh Shadid; Hailey Hagins; Isaac Yeboah Addo; Qorinah Estiningtyas Sakilah Adnani; Bright Opoku Ahinkorah; Ayman Ahmed; Fadwa Naji Alhalaiqa; Mohammed Usman Ali; Sabah Al-Marwani; Joseph Uy Almazan; Sami Almustanyir; Farrukh Jawad Alvi; Yasser Sami Abdel Dayem Amer; Edward Kwabena Ameyaw; Sohrab Amiri; Catalina Liliana Andrei; Dhanalakshmi Angappan; Catherine M Antony; Aleksandr Y Aravkin; Tahira Ashraf; Jose L Ayuso-Mateos; Amadou Barrow; Kavita Batra; Maryam Bemanalizadeh; Akshaya Srikanth Bhagavathula; Sonu Bhaskar; Jasvinder Singh Singh Bhatti; Srinivasa Rao Bolla; Gabrielle Britton; Joao Mauricio Castaldelli-Maia; Ferrán Catalá-López; Arthur Caye; Vijay Kumar Chattu; Yuen Yu Chong; Liliana G Ciobanu; Samuele Cortese; Natalia Cruz-Martins; Berihun Assefa Dachew; Xiaochen Dai; Amira Hamed Darwish; Mohsen Dashti; Alejandro de la Torre-Luque; Daniel Diaz; Delaney D Ding; Angel Belle Cheng Dy; Arkadiusz Marian Dziedzic; Sepideh Ebrahimi Meimand; Omar Abdelsadek Abdou El Meligy; Iman El Sayed; Frank J Elgar; Adeniyi Francis Fagbamigbe; Pawan Sirwan Faris; Andre Faro; Nuno Ferreira; Irina Filip; Florian Fischer; Aravind P Gandhi; Balasankar Ganesan; Miglas Welay Gebregergis; Mesfin Gebrehiwot; Bardiya Ghaderi Yazdi; Mohammad-Reza Ghasemi; Afsaneh Ghasemzadeh; Sasidhar Gunturu; Veer Bala Gupta; Vivek Kumar Gupta; Sobia Ahsan Halim; Brian J Hall; Fulei Han; Josep Maria Haro; Ahmed I Hasaballah; Simon I Hay; Darren Hedley; Bartosz Helfer; Md Mahbub Hossain; Bing-Fang Hwang; Umar Idris Ibrahim; Mehran Ilaghi; Md Rabiul Islam; Sheikh Mohammed Shariful Islam; Mahalaxmi Iyer; Khushleen Jaggi; Haitham Jahrami; Elham Jamshidi; Ali Khaleghi; Abdul Aziz Khan; Mohammad Jobair Khan; Feriha Fatima Khidri; Kwanghyun Kim; Hyun Yong Koh; Manasi Kumar; Iván Landires; Long Khanh Dao Le; Seung Won Lee; Zhihui Li; Stephen S Lim; Jose Martinez-Raga; Roy Rillera Marzo; Indu Liz Matthew; Andrea Maugeri; Tomislav Mestrovic; Philip B Mitchell; Salahuddin Mohammed; Ali H Mokdad; Lorenzo Monasta; Fateme Montazeri; Matías Mrejen; Faraz Mughal; Christopher JL Murray; Woojae Myung; Javaid Nauman; Charles Richard James Newton; Huong Lan Thi Nguyen; Chisom Adaobi Nri-Ezedi; Vincent Ebuka Nwatah; Adeolu Olufunso Oladunjoye; Isaac Iyinoluwa Olufadewa; Michal Ordak; Nikita Otstavnov; Raul Felipe Palma-Alvarez; Romil R Parikh; Seoyeon Park; Maja Pasovic; Jay Patel; Marcos Pereira; Maria Odete Pereira; Michael R Phillips; Guilherme V Polanczyk; Mohammad Pourfridoni; Jagadeesh Puvvula; Amir Radfar; Fakher Rahim; Mosiur Rahman; Muhammad Aziz Rahman; Amir Masoud Rahmani; Masoud Rahmati; Zubair Ahmed Ratan; Taeho Gregory Rhee; Luca Ronfani; Priyanka Roy; Basema Ahmad Saddik; Amene Saghazadeh; Joseph W Sakshaug; Sana Salehi; Vijaya Paul Samuel; Senthilkumar Sankararaman; Aswini Saravanan; Maheswar Satpathy; Austin E Schumacher; David C Schwebel; Mario Šekerija; Arman Shafiee; Saeed Shahabi; Muhammad Aaqib Shamim; João Pedro Silva; Yonatan Solomon; Lourdes Bernadette C Sumpaico-Tanchanco; Chandan Kumar Swain; Rafael Tabarés-Seisdedos; Mohamad-Hani Temsah; Samuel Tromans; Lilian Tzivian; Ravi Prasad Varma; Andres Fernando Vinueza Veloz; Maria Fernanda Vinueza Veloz; Mandaras Tariku Walde; Muhammad Waqas; Nuwan Darshana Wickramasinghe; Renjulal Yesodharan; Dong Keon Yon; Yoosik Youm; Burhan Abdullah Zaman; Youjie Zeng; Magdalena Zielińska; Harvey A Whiteford; Traolach Brugha; James G Scott; Theo Vos; Alize J Ferrari
Publication Year: 2024
Subject Terms: Clinical sciences; Health sciences; Psychology; Applied and developmental psychology; Clinical and health psychology; Global Burden of Disease Study 2021 Autism Spectrum Collaborators; Humans; Prevalence; Bayes Theorem; Quality-Adjusted Life Years; Cost of Illness; Adolescent; Adult; Child; Preschool; Female; Male; Young Adult; Global Health; Autism Spectrum Disorder; Global Burden of Disease; Disability-Adjusted Life Years
Description: Background: High-quality estimates of the epidemiology of the autism spectrum and the health needs of autistic people are necessary for service planners and resource allocators. Here we present the global prevalence and health burden of autism spectrum disorder from the Global Burden of Diseases, Injuries, and Risk Factors Study (GBD) 2021 following improvements to the epidemiological data and burden estimation methods. Methods: For GBD 2021, a systematic literature review involving searches in PubMed, Embase, PsycINFO, the Global Health Data Exchange, and consultation with experts identified data on the epidemiology of autism spectrum disorder. Eligible data were used to estimate prevalence via a Bayesian meta-regression tool (DisMod-MR 2.1). Modelled prevalence and disability weights were used to estimate health burden in years lived with disability (YLDs) as the measure of non-fatal health burden and disability-adjusted life-years (DALYs) as the measure of overall health burden. Data by ethnicity were not available. People with lived experience of autism were involved in the design, preparation, interpretation, and writing of this Article. Findings: An estimated 61·8 million (95% uncertainty interval 52·1–72·7) individuals (one in every 127 people) were on the autism spectrum globally in 2021. The global age-standardised prevalence was 788·3 (663·8–927·2) per 100 000 people, equivalent to 1064·7 (898·5–1245·7) autistic males per 100 000 males and 508·1 (424·6–604·3) autistic females per 100 000 females. Autism spectrum disorder accounted for 11·5 million (7·8–16·3) DALYs, equivalent to 147·6 (100·2–208·2) DALYs per 100 000 people (age-standardised) globally. At the super-region level, age-standardised DALY rates ranged from 126·5 (86·0–178·0) per 100 000 people in southeast Asia, east Asia, and Oceania to 204·1 (140·7–284·7) per 100 000 people in the high-income super-region. DALYs were evident across the lifespan, emerging for children younger than age 5 years (169·2 [115·0–237·4] DALYs per 100 000 people) ...
Document Type: article in journal/newspaper
Language: unknown
Relation: 2381/29047211.v1; https://figshare.com/articles/journal_contribution/The_global_epidemiology_and_health_burden_of_the_autism_spectrum_findings_from_the_Global_Burden_of_Disease_Study_2021/29047211
Availability: https://figshare.com/articles/journal_contribution/The_global_epidemiology_and_health_burden_of_the_autism_spectrum_findings_from_the_Global_Burden_of_Disease_Study_2021/29047211
Rights: CC BY 4.0
Accession Number: edsbas.57DB0904
Database: BASE