| Title: |
Feasibility and Acceptability of an Electronic Decision Aid for Genetic Testing in Ovarian and Pancreatic Cancer Patients |
| Authors: |
Lynch, Danielle A; Wiser, Sarah; Patel, Devanshi; Patel, Kajal; Siegel, Ava; Wooters, Mackenzie; Rodgers-Fouche, Linda; Bouberhan, Sara; Weekes, Colin; Addo-Tabiri, Nana; Zayhowski, Kimberly; Pottier, Elizabeth; Sepucha, Karen R; Chang, Yuchiao; Shannon, Kristen M; Chung, Daniel C |
| Source: |
Research Connections ; ISSN 3049-5245 |
| Publisher Information: |
Oxford University Press (OUP) |
| Publication Year: |
2026 |
| Description: |
Background and Aims Germline genetic testing is recommended for all patients with ovarian or pancreatic cancer, and alternative service delivery models are needed to meet this demand. We evaluated an electronic decision aid (DA) that can be administered during a visit with an oncology provider. The DA centered around the decision to pursue genetic testing and selection of a specific multi-gene panel. Methods An electronic DA had previously been developed by a multi-disciplinary team. Patients were enrolled at two academic medical centers. We surveyed participants with ovarian or pancreatic cancer who completed the DA about their experience and knowledge gained. Oncology providers were also surveyed. Results 92 patients were enrolled. The DA took 13.7 minutes to complete. There was a 20% increase in knowledge scores after using the DA. 95% opted to pursue genetic testing; 20% chose the smallest cancer-specific gene panel, 31% chose the mid-size multi-cancer panel, and 49% chose the largest panel that included limited evidence genes. Nearly all participants (93%) indicated the DA helped their decision-making and 95% would recommend the DA to friends interested in genetic testing. 91% of providers felt patients were well-informed about genetic testing options and 93% indicated the DA did not extend appointment times. Conclusions Use of a DA for genetic testing is feasible and acceptable. Patients and providers expressed high levels of satisfaction. The wide range of multi-gene panels selected highlights the importance of offering choice. Studies to formally compare the performance of the DA with traditional genetic counseling are warranted. |
| Document Type: |
article in journal/newspaper |
| Language: |
English |
| DOI: |
10.1093/rescon/vmag026 |
| DOI: |
10.1093/rescon/vmag026/67415981/vmag026.pdf |
| Availability: |
https://doi.org/10.1093/rescon/vmag026; https://academic.oup.com/rescon/advance-article-pdf/doi/10.1093/rescon/vmag026/67415981/vmag026.pdf |
| Rights: |
https://creativecommons.org/licenses/by/4.0/ |
| Accession Number: |
edsbas.6DF5FA33 |
| Database: |
BASE |