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Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation

Title: Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation
Authors: Boutillier B; Embleton ND; Belanger S; Bigras-Mercier A; Larone Juneau A; Barrington KJ; Janvier A
Source: Children, August 2023
Publisher Information: MDPI
Publication Year: 2023
Collection: Newcastle University Library ePrints Service
Description: © 2023 by the authors. Introduction: In neonatology, multiple pregnancies are common. Unfortunately, it is not rare for one baby to die. Communication with parents in these circumstances has been demonstrated to be sub-optimal. Methods: Two educational programs were evaluated with pre- and post-course surveys, questionnaires administered to participants, and audits. Results: In the online Butterfly project (UK; n = 734 participants), all participants reported that the training exceeded or met their expectations, 97% reported they learned new skills, and 48% had already applied them. Participants expressed gratitude in their open-ended answers: “I feel a lot more confident in supporting parents in this situation”. In the Ribbon project (workshop for neonatal clinicians, Quebec; n = 242), 97% were satisfied with the training and reported feeling more comfortable caring for bereaved parents. Knowledge improved pre–post training. Audits revealed that 100% of cases were identified on the incubator and the baby’s/babies’ admission card, all changed rooms after the death of their co-twin/triplet, and all had the name of their co-twin/triplet on the discharge summary. All clinicians (55) knew what the ribbon symbol meant when asked during surprise audits at the bedside. Conclusion: Different educational strategies to optimize communication with families after the perinatal loss of a co-twin are appreciated and have a positive impact.
Document Type: article in journal/newspaper
File Description: application/pdf
Language: unknown
Relation: https://eprints.ncl.ac.uk/293296; https://eprints.ncl.ac.uk/fulltext.aspx?url=293296/96C03A26-3550-4FA6-AC4A-7569C2512760.pdf&pub_id=293296
Availability: https://eprints.ncl.ac.uk/293296
Rights: https://creativecommons.org/licenses/by/4.0/
Accession Number: edsbas.7DFAE9E8
Database: BASE