| Title: |
Feasibility of remote measurement in intensive longitudinal data collection for RA patients commencing a new treatment |
| Authors: |
Hsiu Yen Tung; James Galloway; Faith Matcham; Amy Boalch; Ginny Shand; Sam Norton |
| Publication Year: |
2025 |
| Collection: |
University of Sussex (US): Figshare |
| Subject Terms: |
Clinical sciences; rheumatoid arthritis; EMA; FitBit; longitudinal; intensive monitoring; wearables; ambulatory assessment; somatic symptoms; feasibility; acceptability; qualitative; 3202 Clinical sciences |
| Description: |
Objectives This paper aims to evaluate the feasibility and acceptability of intensive assessment of symptoms in Rheumatoid Arthritis patients starting a new biologic treatment. Methods Participant symptoms and experiences were collected six times a day for fourteen days, and once a day for sixteen days in a single cohort. Wearable devices were also given to participants to track sleep and physical activity. Qualitative interviews were conducted to provide feedback into the acceptability of methods. Recruitment and completion rates were used to test for feasibility. The mean and variability of data for each day were calculated to reflect on data quality. Qualitative interview data was analysed by deductive thematic analysis. Results Of the 110 patients approached, 27 (15.5%) could not be contacted and 12 (14.5%) were excluded due to meeting exclusion criteria. Of 71 contactable and eligible participants, 31 (43.7%) joined the study. The survey completion rate was 74.6% (1943/2604) for the first 14 days, ranging from 10.7% to 100%. Completion rates for days 15 to 30 ranged from 60 to 83%. Mean levels of severity of symptoms (pain, fatigue, joint stiffness) displayed a decrease after treatment, as expected. Qualitative interviews demonstrated that participants reported a positive experience, which was not overly burdensome. Surveys were described as quick and easy to complete, but repetitive for some participants. Discussion Recruitment and completion rates were acceptable and comparable to similar studies in the field. Qualitative analysis showed largely positive reviews from participants with feedback mainly focusing on survey timings. |
| Document Type: |
article in journal/newspaper |
| Language: |
unknown |
| Relation: |
10779/uos.29573837.v1; https://figshare.com/articles/journal_contribution/Feasibility_of_remote_measurement_in_intensive_longitudinal_data_collection_for_RA_patients_commencing_a_new_treatment/29573837 |
| Availability: |
https://figshare.com/articles/journal_contribution/Feasibility_of_remote_measurement_in_intensive_longitudinal_data_collection_for_RA_patients_commencing_a_new_treatment/29573837 |
| Rights: |
CC BY 4.0 |
| Accession Number: |
edsbas.8DF76ADA |
| Database: |
BASE |