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International REgistry to assess medical Practice with lOngitudinal obseRvation for Treatment of Heart Failure (REPORT-HF): rationale for and design of a global registry

Title: International REgistry to assess medical Practice with lOngitudinal obseRvation for Treatment of Heart Failure (REPORT-HF): rationale for and design of a global registry
Authors: Filippatos, G; Khan, SS; Ambrosy, AP; Cleland, JGF; Collins, SP; Lam, CSP; Angermann, CE; Ertl, G; Dahlstrom, U; Hu, D; Dickstein, K; Perrone, SV; Ghadanfar, M; Bermann, G; Noe, A; Schweizer, A; Maier, T; Gheorghiade, M
Source: 533 ; 527
Publisher Information: Wiley
Publication Year: 2015
Collection: Imperial College London: Spiral
Subject Terms: Science & Technology; Life Sciences & Biomedicine; Cardiac & Cardiovascular Systems; Cardiovascular System & Cardiology; Heart failure; Hospitalized; Global; Morbidity; Mortality; Quality of life; CLINICAL CHARACTERISTICS; PATIENT CHARACTERISTICS; EJECTION FRACTION; EUROPEAN-SOCIETY; UNITED-STATES; OUTCOMES; ASSOCIATION; QUESTIONNAIRE; POPULATION; PROGRAM; Adult; Global Health; Hospitalization; Humans; Longitudinal Studies; Prospective Studies; Registries; Research Design; Surveys and Questionnaires; Cardiovascular System & Hematology
Description: Aims The clinical characteristics, initial presentation, management, and outcomes of patients hospitalized with new-onset (first diagnosis) heart failure (HF) or decompensation of chronic HF are poorly understood worldwide. REPORT-HF (International REgistry to assess medical Practice with lOngitudinal obseRvation for Treatment of Heart Failure) is a global, prospective, and observational study designed to characterize patient trajectories longitudinally during and following an index hospitalization for HF. Methods Data collection for the registry will be conducted at ∼300 sites located in ∼40 countries. Comprehensive data including demographics, clinical presentation, co-morbidities, treatment patterns, quality of life, in-hospital and post-discharge outcomes, and health utilization and costs will be collected. Enrolment of ∼20 000 adult patients hospitalized with new-onset (first diagnosis) HF or decompensation of chronic HF over a 3-year period is planned with subsequent 3 years follow-up. Perspective The REPORT-HF registry will explore the clinical characteristics, management, and outcomes of HF worldwide. This global research programme may have implications for the formulation of public health policy and the design and conduct of international clinical trials.
Document Type: article in journal/newspaper
Language: unknown
Relation: European Journal of Heart Failure; http://hdl.handle.net/10044/1/42290; http://dx.doi.org/10.1002/ejhf.262
DOI: 10.1002/ejhf.262
Availability: http://hdl.handle.net/10044/1/42290; https://doi.org/10.1002/ejhf.262
Rights: This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.
Accession Number: edsbas.945F471A
Database: BASE