| Title: |
Development of a Perinatal Palliative Care Model at a Level II Perinatal Center Supported by a Pediatric Palliative Care Network |
| Authors: |
Bolognani, Marco; Morelli, Paola Daniela; Scolari, Isabella; Dolci, Cristina; Fiorito, Valentina; Uez, Francesca; Graziani, Silvia; Stefani, Barbara; Zeni, Francesca; Gobber, Gino; Bravi, Elena; Tateo, Saverio; Soffiati, Massimo |
| Source: |
Frontiers in Pediatrics ; volume 8 ; ISSN 2296-2360 |
| Publisher Information: |
Frontiers Media SA |
| Publication Year: |
2021 |
| Collection: |
Frontiers (Publisher - via CrossRef) |
| Description: |
Objective: To describe the model build up to take care of fetuses and newborns eligible to perinatal palliative care (PnPC) followed in an Italian II level perinatal center. Methods: Retrospective chart review of all fetuses and newborn infants eligible to PnPC admitted to level II perinatal center within a 4 years period. Results: Forty-five of 848 infants (0.5%) referred to II level NICU were eligible to PnPC. Twenty-seven percentage had fetal diagnosis. Twenty percentage were preterm infants at the limit of viability, 35% were newborns with life limiting or life threatening disease diagnosed in utero or at the postnatal ward, 45% were newborns not responding to intensive care intervention with high health care needs or medical complexity. Fifty-seven percentage of neonates admitted to NICU died before discharge, while 16 (35% of population considered) were discharged home. Median age at death was 4 days after birth, and delivery room death immediately after birth occurred in six patients (13%). Conclusions: Despite the paucity of our population and the high variability in disease trajectories the perinatal palliative care program build up in our region provides a reproducible method for a structured taking in charge of fetuses and neonates eligible to PnPC and their families, from the time of diagnosis to bereavement, in both outpatient and inpatient settings. |
| Document Type: |
article in journal/newspaper |
| Language: |
unknown |
| DOI: |
10.3389/fped.2020.574397 |
| DOI: |
10.3389/fped.2020.574397/full |
| Availability: |
https://doi.org/10.3389/fped.2020.574397; https://www.frontiersin.org/articles/10.3389/fped.2020.574397/full |
| Rights: |
https://creativecommons.org/licenses/by/4.0/ |
| Accession Number: |
edsbas.9DA1A0BF |
| Database: |
BASE |