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Changing perception and improving knowledge of leprosy: An intervention study in Uttar Pradesh, India

Title: Changing perception and improving knowledge of leprosy: An intervention study in Uttar Pradesh, India
Authors: van ‘t Noordende, Anna T.; Lisam, Suchitra; Singh, Vivek; Sadiq, Atif; Agarwal, Ashok; Hinders, Duane C.; Richardus, Jan Hendrik; van Brakel, Wim H.; Korfage, Ida J.
Contributors: Chandler, David John; dutch postcode lottery
Source: PLOS Neglected Tropical Diseases ; volume 15, issue 8, page e0009654 ; ISSN 1935-2735
Publisher Information: Public Library of Science (PLoS)
Publication Year: 2021
Collection: PLOS Publications (via CrossRef)
Description: Introduction Since ancient times leprosy has had a negative perception, resulting in stigmatization. To improve the lives of persons affected by leprosy, these negative perceptions need to change. The aim of this study is to evaluate interventions to change perceptions and improve knowledge of leprosy. Methodology/Principal findings We conducted a pre-post intervention study in Fatehpur and Chandauli districts, Uttar Pradesh, India. Based on six steps of quality intervention development (6SQuID) two interventions were designed: (1) posters that provided information about leprosy and challenged misconceptions, and (2) meetings with persons affected by leprosy, community members and influential people in the community. The effect of the interventions was evaluated in a mixed-methods design; in-depth interviews, focus group discussions, and questionnaires containing a knowledge measure (KAP), two perception measures (EMIC-CSS, SDS) and an intervention evaluation tool. 1067 participants were included in Survey 1 and 843 in Survey 2. The interventions were effective in increasing knowledge of all participant groups, and in changing community and personal attitudes of close contacts and community members (changes of 19%, 24% and 13% on the maximum KAP, EMIC-CSS and SDS scores respectively, p
Document Type: article in journal/newspaper
Language: English
DOI: 10.1371/journal.pntd.0009654
Availability: https://doi.org/10.1371/journal.pntd.0009654; https://dx.plos.org/10.1371/journal.pntd.0009654
Rights: http://creativecommons.org/licenses/by/4.0/
Accession Number: edsbas.A7FECEE2
Database: BASE