| Title: |
Access to diagnostic and therapeutic facilities for psychogenic nonepileptic seizures: An international survey by the ILAE PNES Task Force-2nd Revision |
| Authors: |
Hingray, Coraline; El-Hage, Wissam; Duncan, Rod; Gigineishvili, David; Kanemoto, Kousuke; Lafrance, W. Curt; de Marinis, Alejandro; Paul, Ravi; Pretorius, Chrisma; Téllez-Zenteno, José; Wiseman, Hannah; Reuber, Markus |
| Contributors: |
Centre Hospitalier Régional Universitaire de Nancy (CHRU Nancy); Imaging, Brain & Neuropsychiatry (iBraiN); Université de Tours (UT)-Institut National de la Santé et de la Recherche Médicale (INSERM); Centre d’Investigation Clinique CHRU Tours (CIC 1415); Centre Hospitalier Régional Universitaire de Tours (CHRU Tours)-Institut National de la Santé et de la Recherche Médicale (INSERM); Centre Hospitalier Régional Universitaire de Tours (CHRU Tours); University of Otago Dunedin, Nouvelle-Zélande; Ivane Javakhishvili Tbilisi State University (TSU); Aichi Medical University School of Medicine Nagakute, Aichi, Japan (AMUSM); Rhode Island Hospital Providence, RI, États-Unis; Brown University; Universidad del Desarrollo; University of Zambia Lusaka (UNZA); Stellenbosch University (SU); University of Saskatchewan Saskatoon, Canada (U of S); University of Bath Bath; University of Sheffield Sheffield |
| Source: |
ISSN: 0013-9580. |
| Publisher Information: |
CCSD; Wiley |
| Publication Year: |
2018 |
| Collection: |
Université François-Rabelais de Tours: HAL |
| Subject Terms: |
diagnostic methods; dissociation; psychogenic nonepileptic seizures; psychopathology; therapeutic strategies; [SDV.MHEP.PSM]Life Sciences [q-bio]/Human health and pathology/Psychiatrics and mental health |
| Description: |
International audience ; Objective: Studies from a small number of countries suggest that patients with psychogenic nonepileptic seizures (PNES) have limited access to diagnostic and treatment services. The PNES Task Force of the International League Against Epilepsy (ILAE) carried out 2 surveys to explore the diagnosis and treatment of PNES around the world. Methods: A short survey (8 questions) was sent to all 114 chapters of the ILAE. A longer survey (36 questions) was completed by healthcare professionals who see patients with seizures. Questions were separated into 5 sections: professional role, diagnostic methods, management, etiology, and access to health care. Results: Responses were received from 63 different countries. The short survey was completed by 48 ILAE chapters, and the long survey by 1098 health professionals from 28 countries. PNES were recognized as a diagnostic and therapeutic problem in all countries. Trauma and mental health issues were most commonly recognized as etiologic factors. There was a clear relationship between income and access to diagnostic tests and expertise. Psychological therapy was most commonly considered the treatment of choice. Although financial difficulties were the most commonly reported problem with service access in low-income countries, inall countries stigma, lack of popular awareness, and lack of information posed challenges. Significance: This global provider survey demonstrates that PNES are a health problem around the world. Health care for PNES could be improved with better education of healthcare professionals, the development of reliable and simple diagnostic procedures that do not rely on costly tests, and the provision of accessible information. |
| Document Type: |
article in journal/newspaper |
| Language: |
English |
| Relation: |
info:eu-repo/semantics/altIdentifier/pmid/29152734; PUBMED: 29152734 |
| DOI: |
10.1111/epi.13952 |
| Availability: |
https://univ-tours.hal.science/hal-02524191; https://univ-tours.hal.science/hal-02524191v1/document; https://univ-tours.hal.science/hal-02524191v1/file/2018%20Hingray%20et%20al.%20Accepted%20manuscript.pdf; https://doi.org/10.1111/epi.13952 |
| Rights: |
https://about.hal.science/hal-authorisation-v1/ ; info:eu-repo/semantics/OpenAccess |
| Accession Number: |
edsbas.ABAB0338 |
| Database: |
BASE |