| Title: |
Tackling Dementia Together via The Australian Dementia Network (ADNeT): A Summary of Initiatives, Progress and Plans |
| Authors: |
Naismith, SL; Michaelian, JC; Santos, C; Mehrani, I; Robertson, J; Wallis, K; Lin, X; Ward, SA; Martins, R; Masters, CL; Breakspear, M; Ahern, S; Fripp, J; Schofield, PR; Sachdev, PS; Rowe, CC |
| Source: |
urn:ISSN:1387-2877 ; urn:ISSN:1875-8908 ; Journal of Alzheimer S Disease, 96, 3, 913-925 |
| Publisher Information: |
SAGE Publications |
| Publication Year: |
2023 |
| Collection: |
UNSW Sydney (The University of New South Wales): UNSWorks |
| Subject Terms: |
32 Biomedical and Clinical Sciences; 5202 Biological Psychology; 3202 Clinical Sciences; 3209 Neurosciences; 52 Psychology; Alzheimer's Disease Related Dementias (ADRD); Clinical Trials and Supportive Activities; Prevention; Alzheimer's Disease; Health Services; Clinical Research; Dementia; Aging; Neurosciences; Acquired Cognitive Impairment; Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD); Neurodegenerative; Brain Disorders; 4.5 Resources and infrastructure (detection); Neurological; 3 Good Health and Well Being; Humans; Australia; Alzheimer Disease; Cognitive Dysfunction; Delivery of Health Care; ADNeT; Alzheimer’s disease; Australian Dementia Network; clinical quality registry |
| Description: |
In 2018, the Australian Dementia Network (ADNeT) was established to bring together Australia’s leading dementia researchers, people with living experience and clinicians to transform research and clinical care in the field. To address dementia diagnosis, treatment, and care, ADNeT has established three core initiatives: the Clinical Quality Registry (CQR), Memory Clinics, and Screening for Trials. Collectively, the initiatives have developed an integrated clinical and research community, driving practice excellence in this field, leading to novel innovations in diagnostics, clinical care, professional development, quality and harmonization of healthcare, clinical trials, and translation of research into practice. Australia now has a national Registry for Mild Cognitive Impairment and dementia with 55 participating clinical sites, an extensive map of memory clinic services, national Memory and Cognition Clinic Guidelines and specialized screening for trials sites in five states. This paper provides an overview of ADNeT’s achievements to date and future directions. With the increase in dementia cases expected over coming decades, and with recent advances in plasma biomarkers and amyloid lowering therapies, the nationally coordinated initiatives and partnerships ADNeT has established are critical for increased national prevention efforts, co-ordinated implementation of emerging treatments for Alzheimer’s disease, innovation of early and accurate diagnosis, driving continuous improvements in clinical care and patient outcome and access to post-diagnostic support and clinical trials. For a heterogenous disorder such as dementia, which is now the second leading cause of death in Australia following cardiovascular disease, the case for adequate investment into research and development has grown even more compelling. |
| Document Type: |
article in journal/newspaper |
| Language: |
unknown |
| Relation: |
http://purl.org/au-research/grants/nhmrc/APP1152623; https://hdl.handle.net/1959.4/unsworks_84926 |
| DOI: |
10.3233/JAD-230854 |
| Availability: |
https://hdl.handle.net/1959.4/unsworks_84926; https://doi.org/10.3233/JAD-230854 |
| Rights: |
open access ; https://purl.org/coar/access_right/c_abf2 ; CC BY ; https://creativecommons.org/licenses/by/4.0/ |
| Accession Number: |
edsbas.AD1E4FB2 |
| Database: |
BASE |