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Health-related quality of life in nondialysis CKD patients: a comprehensive description of five-year trajectories among the CKD–REIN cohort

Title: Health-related quality of life in nondialysis CKD patients: a comprehensive description of five-year trajectories among the CKD–REIN cohort
Authors: Moustapha Faye; Lisa Le Gall; Aghilès Hamroun; Lucile Montalescot; Karen Leffondre; Natalia Alencar de Pinho; Bénédicte Stengel; Adama Faye; Luc Frimat; Abdou Omorou; on behalf of the CKD–REIN study collaborators
Source: BMC Nephrology, Vol 27, Iss 1, Pp 1-13 (2026)
Publisher Information: BMC
Publication Year: 2026
Collection: Directory of Open Access Journals: DOAJ Articles
Subject Terms: Chronic kidney disease; Clinical epidemiology; Cohort studies; Mental component summary; Physical component summary; Diseases of the genitourinary system. Urology; RC870-923
Description: Background Few studies have analyzed the quality-of-life trajectories of CKD patients not receiving kidney replacement therapy, and the results are inconsistent. This study aimed to identify subgroups of long-term trajectories of the physical (PCS) and mental components summary (MCS) of the KDQOL-36 in patients with CKD stages 3–5 and to describe their associations with patient characteristics. Methods We used a joint latent class–mixed model to identify the PCS and MCS trajectories of 2716 patients with CKD stages 3–5 enrolled in the CKD–Renal Epidemiology and Information Network (CKD–REIN) cohort study. Quality-of-life was assessed annually using the Kidney Disease Quality-of-life-36. All the participants had scores for at least one-time point. Results During a median follow-up of 5.56 (4.77–6.16) years, 664 participants started KRT, and 465 died before KRT. We identified three profiles of PCS: a “High and declining PCS trajectory” which included 5.89% of patients, characterized by a higher initial score and a decline of more than 10 points over three years; a “High and stable PCS trajectory” in 50.96%, characterized by a higher initial score that remained stable; and a “Low and stable PCS trajectory” in 43.15%, characterized by a lower initial score that remained stable. For MCS, we identified a single, stable mean trajectory over time. A decline in eGFR was faster in participants with a “High and declining PCS trajectory” (-4.30 mL/min per years). Patients in the high and stable trajectory had a more favorable clinical and biological profile at baseline. The evolution of the specific dimensions of CKD within each PCS trajectory followed a pattern similar to that of the PCS itself. Conclusions The study highlights substantial heterogeneity in PCS evolution in patients with CKD, which contrasts with the stability of that for MCS.
Document Type: article in journal/newspaper
Language: English
Relation: https://doi.org/10.1186/s12882-025-04702-2; https://doaj.org/toc/1471-2369; https://doaj.org/article/cbb9c23f321a417484f27d810f6ce1e4
DOI: 10.1186/s12882-025-04702-2
Availability: https://doi.org/10.1186/s12882-025-04702-2; https://doaj.org/article/cbb9c23f321a417484f27d810f6ce1e4
Accession Number: edsbas.D67CAB03
Database: BASE