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Health-related quality of life of children born very preterm: a multinational European cohort study

Title: Health-related quality of life of children born very preterm: a multinational European cohort study
Authors: Kim, SW; Andronis, L; Seppänen, AV; Aubert, AM; Barros, H; Draper, ES; Sentenac, M; Zeitlin, J; Petrou, S; SHIPS Research Group
Contributors: Instituto de Saúde Pública da Universidade do Porto
Publisher Information: Springer
Publication Year: 2022
Collection: Repositório Aberto da Universidade do Porto
Description: Purpose This study aims to (1) describe the health-related quality of life (HRQoL) outcomes experienced by children born very preterm (28–31 weeks’ gestation) and extremely preterm (< 28 weeks’ gestation) at five years of age and (2) explore the mediation effects of bronchopulmonary dysplasia (BPD) and severe non-respiratory neonatal morbidity on those outcomes. Methods This investigation was based on data for 3687 children born at < 32 weeks’ gestation that contributed to the EPICE and SHIPS studies conducted in 19 regions across 11 European countries. Descriptive statistics and multi-level ordinary linear squares (OLS) regression were used to explore the association between perinatal and sociodemographic characteristics and PedsQL™ GCS scores. A mediation analysis that applied generalised structural equation modelling explored the association between potential mediators and PedsQL™ GCS scores. Results The multi-level OLS regression (fully adjusted model) revealed that birth at < 26 weeks’ gestation, BPD status and experience of severe non-respiratory morbidity were associated with mean decrements in the total PedsQL™ GCS score of 0.35, 3.71 and 5.87, respectively. The mediation analysis revealed that the indirect effects of BPD and severe non-respiratory morbidity on the total PedsQL™ GCS score translated into decrements of 1.73 and 17.56, respectively, at < 26 weeks’ gestation; 0.99 and 10.95, respectively, at 26–27 weeks’ gestation; and 0.34 and 4.80, respectively, at 28–29 weeks’ gestation (referent: birth at 30–31 weeks’ gestation). Conclusion The findings suggest that HRQoL is particularly impaired by extremely preterm birth and the concomitant complications of preterm birth such as BPD and severe non-respiratory morbidity. ; This study was supported by a grant from the European Union’s Horizon 2020 Research and Innovation Programme under grant agreement No 633724. Prof Petrou receives support as a National Institute for Health Research (NIHR) Senior Investigator (NF-SI-0616-10103) and from ...
Document Type: article in journal/newspaper
File Description: application/pdf
Language: English
Relation: info:eu-repo/grantAgreement/EC/H2020/633724/EU; Qual Life Res. 2023 Jan;32(1):47-58. doi:10.1007/s11136-022-03217-9. Epub 2022 Aug 17.; https://link.springer.com/article/10.1007/s11136-022-03217-9; https://hdl.handle.net/10216/151593
DOI: 10.1007/s11136-022-03217-9
Availability: https://hdl.handle.net/10216/151593; https://doi.org/10.1007/s11136-022-03217-9
Rights: info:eu-repo/semantics/openAccess
Accession Number: edsbas.D9819082
Database: BASE