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The Caring Intensively Study: Three-Year Follow-Up Findings From a Mixed Methods Study of Children’s Psychological and Behavioral Responses After PICU Hospitalization

Title: The Caring Intensively Study: Three-Year Follow-Up Findings From a Mixed Methods Study of Children’s Psychological and Behavioral Responses After PICU Hospitalization
Authors: Rennick, Janet E.; Dougherty, Geoffrey; Dryden-Palmer, Karen; Campbell-Yeo, Marsha; Knox, Alyssa M.; Chambers, Christine T.; Stack, Dale M.; Treherne, Stephanie; Stremler, Robyn
Source: Pediatric Critical Care Medicine ; volume 26, issue 4, page e516-e530 ; ISSN 1529-7535 1947-3893
Publisher Information: Ovid Technologies (Wolters Kluwer Health)
Publication Year: 2025
Description: OBJECTIVES: To report the 3-year follow-up results of the “Caring Intensively” study, which examined children’s psychological and behavioral responses after PICU hospitalization. DESIGN: Prospective mixed methods, concurrent triangulation design. In the quantitative arm, study group (SG) and comparison group (CG) children and their parents were administered a battery of measures assessing psychological and behavioral outcomes, and telephone survey data were collected 6 weeks, 6 months, 1, 2, and 3 years post-discharge. In the qualitative arm, SG interviews were conducted 1 and 3 years post-discharge. Recruitment 2014–2018, with follow-up completed 2021. SETTING: SG recruited from PICUs of three Canadian quaternary care pediatric hospitals; CG from two hospitals’ ear, nose, and throat (ENT) day surgery units. PATIENTS: Age (3–12 yr) and gender-matched PICU children (SG, 158) or day surgery ENT children (CG, 169) and their parents were recruited; 62% of families completed the study (SG, 97; CG, 106). Selected SG families were interviewed at year 1 (17 families, 30 participants) and year 3 (14 families, 27 participants). INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: No group differences on primary or secondary outcomes. Both groups reported emotional and behavioral changes in children via telephone survey; however, group findings diverged on their nature and attribution. SG parents attributed changes primarily to PICU hospitalization; CG parents attributed changes to other life events. At year 3, 40.3% of SG parents still reported negative emotional and behavioral changes in children suggesting a chronic trajectory of recovery. Qualitative interview findings converged with SG survey responses, reflecting the adaptive and relational challenges confronting children and families. CONCLUSIONS: This study highlights children’s emotional and behavioral responses over the 3 years post-PICU and the need to study child recovery within the family. These findings contribute to our understanding of the nature and ...
Document Type: article in journal/newspaper
Language: English
DOI: 10.1097/pcc.0000000000003701
DOI: 10.1097/PCC.0000000000003701
Availability: https://doi.org/10.1097/pcc.0000000000003701; https://journals.lww.com/10.1097/PCC.0000000000003701
Rights: http://creativecommons.org/licenses/by-nc-nd/4.0/
Accession Number: edsbas.E6B20BA5
Database: BASE