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Earnings losses in young-onset dementia: Population-based study with admin data

Title: Earnings losses in young-onset dementia: Population-based study with admin data
Authors: Bagnasco, Gaia; Bakx, Pieter; Wouterse, Bram; van Exel, Job; Licher, Silvan
Source: Bagnasco, G, Bakx, P, Wouterse, B, van Exel, J & Licher, S 2025, 'Earnings losses in young-onset dementia: Population-based study with admin data', Alzheimer's and Dementia, vol. 21, no. 2, e14588. https://doi.org/10.1002/alz.14588
Publication Year: 2025
Description: INTRODUCTION: Young-onset dementia is often diagnosed late, leaving gaps in understanding its impact on employment, income, and social security. METHODS: Analyzing health insurance claims and medical records, we studied 16,010 young-onset dementia cases and 129,616 matched controls. Using a non-parametric event study, we assessed earnings, earnings plus benefits, employment losses, and benefit use, considering demographic and socio-economic factors. RESULTS: Earnings fell by 58.7% in the years prior to dementia identification, totaling €144,013 in losses, and earnings plus benefits decreased by 20.7% (€68,533). We observed a 35.5 percentage point decrease in employment, a 23.9 percentage point increase in disability insurance, and a 2.7 percentage point rise in welfare benefit use. Primary education and lack of a partner correlated with higher earning losses and lower disability insurance uptake. DISCUSSION: Early diagnosis and robust social support systems are vital to alleviate the financial and professional challenges faced by individuals with dementia under age 65. Highlights: Working-age persons experience job loss at least 21 years before dementia identification. Job loss is linked to 59% (€16,643) earnings drop 16 years before dementia identification. Losses in earning were not fully compensated by social insurance. A generous social insurance system eases the financial impact of young-onset dementia. Attention is needed in the work environment and on disability benefit decisions.
Document Type: article in journal/newspaper
File Description: application/pdf
Language: English
ISSN: 1552-5260; 1552-5279
Relation: info:eu-repo/semantics/altIdentifier/pmid/39988635; info:eu-repo/semantics/altIdentifier/pissn/1552-5260; info:eu-repo/semantics/altIdentifier/eissn/1552-5279
DOI: 10.1002/alz.14588
Availability: https://pure.eur.nl/en/publications/5570017d-e48e-413b-9d2b-fcd1549e387c; https://doi.org/10.1002/alz.14588; https://pure.eur.nl/ws/files/186219198/Alzheimer_s_Dementia_-_2025_-_Bagnasco_-_Earnings_losses_in_young_onset_dementia_Population_based_study_with_admin_data.pdf
Rights: info:eu-repo/semantics/openAccess ; http://creativecommons.org/licenses/by/4.0/
Accession Number: edsbas.E809939E
Database: BASE