| Title: |
Development and usability testing of your MS questionnaire: A patient-based digital tool to monitor symptoms of multiple sclerosis. |
| Authors: |
Giovannoni, G.; Alvarez, E.; Tutton, E.; Hoffmann, O.; Xu, Y.; Vermersch, Patrick; Oreja-Guevara, C.; Trojano, M.; Gold, R.; Robles-Cedeño, R.; Khwaja, M.; Stadler, B.; Vandercappellen, J.; Ziemssen, T. |
| Contributors: |
Centre de Recherche Jean-Pierre AUBERT Neurosciences et Cancer - U837 (JPArc); Université Lille Nord de France (COMUE)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Lille |
| Source: |
ISSN: 2055-2076 ; Digital Health ; https://hal.univ-lille.fr/hal-04829703 ; Digital Health, 2023, Digit Health, 9, pp.20552076231173531. ⟨10.1177/20552076231173531⟩. |
| Publisher Information: |
CCSD; SAGE Publications Ltd |
| Publication Year: |
2023 |
| Collection: |
LillOA (HAL Lille Open Archive, Université de Lille) |
| Subject Terms: |
Patient-completed tool; multiple sclerosis; monitoring; people living with MS; telemedicine < General; [SDV]Life Sciences [q-bio] |
| Description: |
International audience ; ObjectivesWe describe the development of Your Multiple Sclerosis Questionnaire and present the real-world usability testing results of Your Multiple Sclerosis Questionnaire.MethodsThe Your Multiple Sclerosis Questionnaire tool was developed in four stages to collect feedback from people living with MS (plwMS), patient organizations, and clinicians on content, format, and applicability. To assess its usability, 13 clinicians across 7 countries completed an online survey after using the tool with plwMS in a total of 261 consultations from September, 2020 to July, 2021.ResultsThe initial Your Multiple Sclerosis Questionnaire version was based on findings from previous research developing MSProDiscuss™, a clinician-completed tool. Subsequently, insights from plwMS obtained during cognitive debriefing, patient councils and advisory boards led to changes including the addition of mood and sexual problems and the definition of relapse. All 13 clinicians completed the individual survey, whereas 10 clinicians completed the final survey. Clinicians “strongly agreed” or “agreed” that Your Multiple Sclerosis Questionnaire was easy to use and understand (98.5%; 257/261 patient consultations). The clinicians were willing to use the tool again with the same patient (98.1%; 256/261 patient consultations). All clinicians who completed the final survey (100%; 10/10) reported the tool to have a positive influence on their clinical practice, helped patients engage with their MS, facilitated discussion with patients, and complemented neurological assessment.ConclusionYour Multiple Sclerosis Questionnaire benefits both plwMS and clinicians by facilitating a structured discussion and engaging the plwMS to self-monitor and self-manage. Your Multiple Sclerosis Questionnaire is compatible with telemedicine practice and integration of the tool into electronic health records would enable tracking of the disease evolution and individual monitoring of MS symptoms over time. |
| Document Type: |
article in journal/newspaper |
| Language: |
English |
| Relation: |
info:eu-repo/semantics/altIdentifier/pmid/37205165; PUBMED: 37205165 |
| DOI: |
10.1177/20552076231173531 |
| Availability: |
https://hal.univ-lille.fr/hal-04829703; https://hal.univ-lille.fr/hal-04829703v1/document; https://hal.univ-lille.fr/hal-04829703v1/file/giovannoni-et-al-2023-development-and-usability-testing-of-your-ms-questionnaire-a-patient-based-digital-tool-to.pdf; https://doi.org/10.1177/20552076231173531 |
| Rights: |
http://creativecommons.org/licenses/by-nc-nd/ ; info:eu-repo/semantics/OpenAccess |
| Accession Number: |
edsbas.F1C18BA9 |
| Database: |
BASE |