| Title: |
ANEmone: The 1 st Acute Necrotizing Encephalopathy Science & Family conference raises hope for an ultra-rare disease |
| Authors: |
Leplat, Maëva; Desgraupes, Sophie; Beucher, Guillaume; Decorsière, Adrien; Perrin, Anouk; Perrin, Suzon; Arhel, Nathalie, J |
| Contributors: |
Institut de Recherche en Infectiologie de Montpellier (IRIM); Centre National de la Recherche Scientifique (CNRS)-Université de Montpellier (UM); Université de Montpellier (UM) |
| Source: |
ISSN: 1267-8694. |
| Publisher Information: |
CCSD; John Libbey Eurotext |
| Publication Year: |
2025 |
| Collection: |
Université de Montpellier: HAL |
| Subject Terms: |
[SDV]Life Sciences [q-bio] |
| Description: |
International audience ; In April 2025, the first-ever science-family symposium on Familial Acute Necrotizing Encephalopathy (ANE1) was hosted in Montpellier with funding from the ANRS-MIE (Emerging Infectious Diseases), the Institut de Recherche en Infectiologie (IRIM), the Université de Montpellier, and the Société française de virologie. The aim of the two-day meeting, co-organised by Nathalie Arhel (IRIM, Université de Montpellier, CNRS) and Kim Smith (ANE-International), was to connect families, doctors and scientists, to raise awareness and accelerate research. |
| Document Type: |
article in journal/newspaper |
| Language: |
English |
| Availability: |
https://hal.science/hal-05517879; https://hal.science/hal-05517879v1/document; https://hal.science/hal-05517879v1/file/10.1684%3Avir.2025.1117.pdf |
| Rights: |
https://creativecommons.org/licenses/by/4.0/ ; info:eu-repo/semantics/OpenAccess |
| Accession Number: |
edsbas.FE596467 |
| Database: |
BASE |