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Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency

Title:	Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency
Authors:	Iverson, Ryan^Aff1; Taljaard, Monica^{Aff1, Aff2}; Geraghty, Michael T.^Aff3; Pugliese, Michael^Aff1; Tingley, Kylie^Aff1; Coyle, Doug^Aff1; Kronick, Jonathan B.^Aff4; Wilson, Kumanan^{Aff1, Aff2, Aff5, Aff6}; Austin, Valerie^Aff4; Brunel-Guitton, Catherine^Aff7; Buhas, Daniela^Aff8; Butcher, Nancy J.^Aff9; Chan, Alicia K. J.^Aff10; Dyack, Sarah^Aff11; Goobie, Sharan^Aff11; Greenberg, Cheryl R.^Aff12; Jain-Ghai, Shailly^Aff10; Inbar-Feigenberg, Michal^Aff4; Karp, Natalya^Aff13; Kozenko, Mariya^Aff14; Langley, Erica^Aff3; Lines, Matthew^Aff15; Little, Julian^Aff1; MacKenzie, Jennifer^{Aff14, Aff16}; Maranda, Bruno^Aff17; Mercimek-Andrews, Saadet^Aff4; Mhanni, Aizeddin^Aff12; Mitchell, John J.^Aff8; Nagy, Laura^Aff4; Offringa, Martin^Aff9; Pender, Amy^Aff14; Potter, Murray^Aff14; Prasad, Chitra^Aff13; Ratko, Suzanne^Aff13; Salvarinova, Ramona^Aff18; Schulze, Andreas^Aff4; Siriwardena, Komudi^Aff10; Sondheimer, Neal^Aff4; Sparkes, Rebecca^Aff19; Stockler-Ipsiroglu, Sylvia^Aff18; Tapscott, Kendra^Aff18; Trakadis, Yannis^Aff8; Turner, Lesley^Aff16; Van Karnebeek, Clara^{Aff18, Aff20}; Vandersteen, Anthony^Aff11; Walia, Jagdeep S.^Aff21; Wilson, Brenda J.^Aff16; Yu, Andrea C.^Aff3; Potter, Beth K.^Aff1; Chakraborty, Pranesh^{Aff3, Aff22, IDs12887023043934_cor50}
Source:	BMC Pediatrics. 24(1)
Database:	Springer Nature Journals