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1
von Charles, Jocelyn ; Liu, Kitty ; Hitzig, Sander ; et al.
International Journal of Integrated Care; Vol. 26 No. S1 (2026): 25th International Conference on Integrated Care, Lisbon, Portugal, 14-16 May 2025; 379 ; 1568-4156
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von Sofia Bzovsky, MSc ; Nathan N. O'Hara, PhD ; Gerard P. Slobogean, MD ; et al.
JBJS Open Access, Vol 10, Iss 4 (2025)
Schlagworte: Orthopedic surgery; RD701-811
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von Marianne Saragosa ; Hardeep Singh ; Lois Kamenitz ; et al.
International Journal of Qualitative Methods, Vol 24 (2025)
Schlagworte: Social sciences (General); H1-99
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von Rosanna Cazzolli ; Angela Ju ; Patrizia Natale ; et al.
Kidney International Reports, Vol 10, Iss 2, Pp 447-456 (2025)
Schlagworte: core outcome; outcome measure; pain; polycystic kidney disease; psychometric evaluation; Diseases of the genitourinary system. Urology; RC870-923
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5
von Charles, Jocelyn ; Ziegler, Naomi ; Landau, Stacy ; et al.
International Journal of Integrated Care; Vol. 25 No. S2 (2025): North America Conference on Integrated Care, Calgary, Canada – 15-17 October 2024; 120 ; 1568-4156
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von Cazzolli, Rosanna ; Ju, Angela ; Natale, Patrizia ; et al.
Cazzolli, R, Ju, A, Natale, P, Teixeira-Pinto, A, Howell, M, Jaure, A, Perrone, R D, Burnette, E, Casteleijn, N F, Chapman, A, Craig, J C, Eastty, S, Gansevoort, R T, Harris, T, Hogan, M C, Horie, S, Knebelmann, B, Lee, R, Manera, K, Mustafa, R A, Sandford, R, Rangan, G K, Sautenet, B, Viecelli, A K & Cho, Y 2025, 'Validating the SONG-PKD Pain Instrument, a Core Outcome Measure for Pain in ADPKD', Kidney International Reports, vol. 10, no. 2, pp. 447-456.
Schlagworte: core outcome; outcome measure; pain; polycystic kidney disease; psychometric evaluation; article; info:eu-repo/semantics/publishedVersion
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7
von Nauth, Aaron ; Creek, Aaron T. ; Zellar, Abby ; et al.
In The Lancet 15-21 April 2017 389(10078):1519-1527
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von Angela Ju ; Allison Tong ; Armando Teixeira-Pinto ; et al.
BMJ Open, Vol 10, Iss 10 (2020)
Schlagworte: Medicine
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von Yeoungjee Cho ; Benedicte Sautenet ; Gopala Rangan ; et al.
Trials, Vol 18, Iss 1, Pp 1-11 (2017)
Schlagworte: Core outcome set; Outcomes research; Patient-centred outcomes clinical trials; Chronic kidney disease; Autosomal dominant polycystic kidney disease; Medicine (General); R5-920
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10
von Shaffer, Christopher D. ; Alvarez, Consuelo J. ; Bednarski, April E. ; et al.
CBE - Life Sciences Education. Mar 2014 13(1):111-130.
Schlagworte: Undergraduate Students; Student Research; Biology; College Science; Student Projects; Information Science; Student Attitudes; Achievement Gains; Educational Benefits; Genetics; Student Surveys; Alumni; Time on Task; Instructional Effectiveness; Science Instruction
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11
von Natale, Patrizia ; Perrone, Ronald D. ; Tong, Allison ; et al.
Natale, P, Perrone, R D, Tong, A, Harris, T, Hannan, E, Ju, A, Burnette, E, Casteleijn, N F, Chapman, A, Eastty, S, Gansevoort, R T, Hogan, M, Horie, S, Knebelmann, B, Lee, R, Mustafa, R A, Sandford, R, Baumgart, A, Craig, J C, Rangan, G K, Sautenet, B, Viecelli, A K, Amir, N, Evangelidis, N, Guha, C, Logeman, C, Manera, K, Matus Gonzalez, A, Howell, M, Strippoli, G F M & Cho, Y 2022, 'Establishing a core outcome measure for pain in patients with autosomal dominant polycystic kidney disease : a consensus workshop report', Clinical Kidney Journal, vol. 15, no. 3, pp. 407-416.
Schlagworte: ADPKD; measure; pain; patient-reported outcomes; workshop; QUALITY-OF-LIFE; TRANSCATHETER ARTERIAL EMBOLIZATION; LIVER VOLUME; LANREOTIDE; TOLVAPTAN; SYMPTOMS; IMPACT; TRIALS; article; info:eu-repo/semantics/publishedVersion
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12
von Natale, Patrizia ; Perrone, Ronald D ; Tong, Allison ; et al.
essn: 2048-8513; nlmid: 101579321
Schlagworte: ADPKD; measure; pain; patient-reported outcomes; workshop; Article
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13
von Coleman, Robert ; Chan, Arlene ; Barrios, Carlos ; et al.
Lancet oncology, 23 (3
Schlagworte: Cancérologie; info:eu-repo/semantics/article; info:ulb-repo/semantics/articleLetterToEditor; info:ulb-repo/semantics/openurl/article
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14
von Carr, Dafna ; Howells, Arlene ; Chang, Melissa ; et al.
Healthcare Quarterly ; volume 12, issue sp, page 62-70 ; ISSN 1929-6347
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von Abani, Obbina ; Abbas, Ali ; Abbas, Fatima ; et al.
Schlagworte: General Medicine
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17
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18
von Abani, Obbina ; Abbas, Ali ; Abbas, Fatima ; et al.
Schlagworte: General Medicine
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19
von Natale, Patrizia ; Perrone, Ronald D ; Tong, Allison ; et al.
Clinical Kidney Journal ; volume 15, issue 3, page 407-416 ; ISSN 2048-8505 2048-8513
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20
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21
von Cho, Yeoungjee ; Rangan, Gopala ; Logeman, Charlotte ; et al.
Cho, Y, Rangan, G, Logeman, C, Ryu, H, Sautenet, B, Perrone, R D, Nadeau-Fredette, A-C, Mustafa, R A, Htay, H, Chonchol, M, Harris, T, Gutman, T, Craig, J C, Ong, A C M, Chapman, A, Ahn, C, Coolican, H, Kao, J T-W, Gansevoort, R T, Torres, V, Pei, Y, Johnson, D W, Viecelli, A K, Teixeira-Pinto, A, Howell, M, Ju, A, Manera, K E & Tong, A 2020, 'Core Outcome Domains for Trials in Autosomal Dominant Polycystic Kidney Disease : An International Delphi Survey', American Journal of Kidney Diseases, vol. 76, no. 3, pp. 361-373. https://doi.org/10.1053/j.ajkd.2020.01.005
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22
von Logeman, Charlotte ; Cho, Yeoungjee ; Sautenet, Benedicte ; et al.
Logeman, C, Cho, Y, Sautenet, B, Rangan, G K, Gutman, T, Craig, J, Ong, A, Chapman, A, Ahn, C, Coolican, H, Tze-Wah Kao, J, Gansevoort, R T, Perrone, R, Harris, T, Torres, V, Fowler, K, Pei, Y, Kerr, P, Ryan, J, Johnson, D, Viecelli, A, Geneste, C, Kim, H, Kim, Y, Howell, M, Ju, A, Manera, K E, Teixeira-Pinto, A, Parasivam, G & Tong, A 2020, ''A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study', BMJ Open, vol. 10, no. 10, e038005.
Schlagworte: article; info:eu-repo/semantics/publishedVersion
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23
von Cho, Yeoungjee ; Sautenet, Benedicte ; Gutman, Talia ; et al.
Cho, Y, Sautenet, B, Gutman, T, Rangan, G, Craig, J C, Ong, A C, Chapman, A, Ahn, C, Coolican, H, Kao, J T-W, Gansevoort, R, Perrone, R D, Harris, T, Torres, V, Pei, Y, Kerr, P G, Ryan, J, Johnson, D W, Viecelli, A K, Geneste, C, Kim, H, Kim, Y, Oh, Y K, Teixeira-Pinto, A, Logeman, C, Howell, M, Ju, A, Manera, K E & Tong, A 2019, 'Identifying patient-important outcomes in polycystic kidney disease : an international nominal group technique study', Nephrology, vol. 24, no. 12, pp. 1214-1224. https://doi.org/10.1111/nep.13566
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24
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25
von Moffett, Howell F ; Cartwright, Adam N R ; Kim, Hye-Jung ; et al.
Nature Immunology ; volume 18, issue 7, page 791-799 ; ISSN 1529-2908 1529-2916
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